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2005, July
User controlled research has been developed by service users and their organisations as a new approach to undertaking research and evaluation. The aim of this project was to find out more about the definition, nature, operation, problems and potential of user controlled research. It was carried out both through a literature review and through information provided directly by a wide range of service users and service user researchers in a series of individual interviews and group discussions. This Report provides the first in-depth discussion and analysis of user controlled research.
The full report will be available on the website shortly. (Michael Turner and Peter Beresford
Shaping Our Lives and the Centre for Citizen Participation, Brunel University, 2005.
) Report Summary
User controlled Research. Its meanings and potential
No. of pages: 11. Filesize 238 kb
Available in 20pt font
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2004, October
EQUIP is a collaboration of trainers with expertise in a diverse range of health-related fields, all with a 'public involvement' focus. This report is on the training they provided to support consumers and researchers in 11 London Primary Care Projects from 2001-2004. They discuss the difficulties they faced as well as reporting on the training workshops they held and their approach to providing outreach to each of the 11 projects. (Linsey Hovard, Sally Crowe, Nain Hussain)
Effectiveness and Quality in User Involvement Projects (EQUIP) Final Report
No. of pages: 113. Filesize 1843 kb
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2004, April (Lockey R, Sitzia J, Gillingham T, Millyard J, Miller C, Ahmed S, Beales A, Bennett C, Parfoot S, Sigrist G and Sigrist J - Worthing and Southlands Hospitals NHS Trust )
Full report: Training for service user involvement in health and social care research - a study of training provision and participants' experiences.
No. of pages: 162. Filesize 1498 kb
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2002, December
Consumers in NHS Research commissioned this piece of work to identify the types of information that are important to potential trial participants and to appraise the ways in which that information could be provided. The assessment was to reflect the perspectives of: people who have recently been approached to take part in a trial, those actively looking to volunteer for a trial, consumer representatives, and the researchers who design and conduct such trials. (Marion Campbell, Vikki Entwistle, Anne Langston, Zoe Skea, Health Services Research Unit, University of Aberdeen)Full document
Scoping study to explore the most appropriate way to produce and disseminate information on the quality of randomised controlled trials for potential participants known as PACT(Participants' Assessment of Clinical Trials)
No. of pages: 43. Filesize 467 kb
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