We would like your help in putting together a database of public
involvement in health and social care related research projects.
Please complete the form about any research projects you have been
involved in that have or plan to actively involve members of the public. The information you provide will be put on
a national database that will be available on the website.
INVOLVE defines the public as:
Patients and potential patients, informal (unpaid)
carers, people who use health and social services, members of the
public
who may be targeted by health promotion programmes, organisations
that represent the interests of people who use health and social
care services and groups asking for research because they believe
they have been exposed to potentially harmful substances or products.
By involvement in research we mean an active partnership between
members of the public and researchers in the research process, rather
than the use of people as ‘subjects’ of research. We
are interested in research being carried out ‘with’ or ‘by’ members
of the public, rather than research being carried out ‘to’, ‘about’ or ‘for’ them.
Active involvement of members of the public may take the form of
consultation, collaboration or control of the research by members
of the public.
We are only collecting information about public involvement in research
projects. This does not include public involvement in other activities,
such as seminars, commissioning groups, or meetings.