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INVOLVE Database

Research Project Database form

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Public Involvement in Research Projects Database

We would like your help in putting together a database of public involvement in health and social care related research projects. Please complete the form about any research projects you have been involved in that have or plan to actively involve members of the public. The information you provide will be put on a national database that will be available on the website.

INVOLVE defines the public as:

Patients and potential patients, informal (unpaid) carers, people who use health and social services, members of the public who may be targeted by health promotion programmes, organisations that represent the interests of people who use health and social care services and groups asking for research because they believe they have been exposed to potentially harmful substances or products.
By involvement in research we mean an active partnership between members of the public and researchers in the research process, rather than the use of people as ‘subjects’ of research. We are interested in research being carried out ‘with’ or ‘by’ members of the public, rather than research being carried out ‘to’, ‘about’ or ‘for’ them. Active involvement of members of the public may take the form of consultation, collaboration or control of the research by members of the public.

We are only collecting information about public involvement in research projects. This does not include public involvement in other activities, such as seminars, commissioning groups, or meetings.

Please complete the form in plain English

PLEASE TELL US YOUR CONTACT DETAILS

(Please mark with an * in the box, any information you do not want to be made publicly available on the database)

Name

Your role in the project

Organisation

Address

Telephone number

Email address

PLEASE TELL US ABOUT THE RESEARCH PROJECT

Title of project:

Project start date:

Project completion date (expected):

Source of funding:

Please briefly describe the aims of the project (max. 8 lines):

Which of the following research designs have / are being used?
(Tick as many boxes as appropriate)

  Action research
  Case study
  Cohort Study
  Evaluation
  Randomised controlled trial
  Study of views/experiences
  Systematic review

Other (please specify)

Which of the following methods of collecting data have / are being used? (Please tick as many boxes as appropriate)

  Documentary analysis
  Focus groups
Interviews
  Questionnaire survey
  Observation
  Outcome measures

Other (please specify)

Please give a brief description of the project, including the research methods and the setting for the research if appropriate (max. 12 lines)

Please tell us about the members of the public that were or are involved in the research project.

Who were/are the members of the public actively involved in the research? E.g. the name of the voluntary organisation, members of the public, patients. (We do not need the names of individuals)

At what stage(s) were/are members of the public involved?
(Please tick as many boxes as appropriate)

Prioritising topic areas
Planning the research
Managing the research
Designing the research instruments (e.g. questionnaires, patient information sheets)
Undertaking the research
Analysing the research
Writing publications
Disseminating research
Implementing action

Other - please specify

Please elaborate on the ways members of the public were/are involved at the different stage(s) (max.8 lines)

Please provide as many examples as possible of the ways in which members of the public have made a difference to the research project

PLEASE TELL US ABOUT WHAT HAS HAPPENED TO THE RESEARCH

Please tell us about any reports or articles resulting from the research and state where they may be obtained

If any articles are planned for the future, please give details

Please provide information about any action arising as a result of the research project

Thank you for completing this form.

Data protection
By submitting this form you will be consenting for the information to be included on the INVOLVE database of research projects. The database will be freely accessed by health professionals, researchers and members of the public through our website and available for an indefinite period of time. The information you have entered will be sent to you for checking prior to it being publicly available on the website.

For further information please contact: Helen Hayes, Information Officer, INVOLVE, 02380 626235, hhayes@invo.org.uk

If the information is correct please click the submit button below.

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