Promoting public involvement
in NHS, public health and
social care research

INVOLVE
NSH National Institute for Health Research

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INVOLVE Database

Research Project Database form

Public Involvement in Research Projects Database


We would like your help in putting together a database of public involvement in health and social care related research projects. Please complete the form about any research projects you have been involved in that have or plan to actively involve
members of the public
. The information you provide will be put on a national database that will be available on the website.

INVOLVE defines the public as:

  • Patients and potential patients, informal (unpaid) carers, people who use health and social services, members of the public who may be targeted by health promotion programmes, organisations that represent the interests of people who use health and social care services and groups asking for research because they believe they have been exposed to potentially harmful substances or products.
  • By involvement in research we mean an active partnership between members of the public and researchers in the research process, rather than the use of people as ‘subjects’ of research. We are interested in research being carried out ‘with’ or ‘by’ members of the public, rather than research being carried out ‘to’, ‘about’ or ‘for’ them. Active involvement of members of the public may take the form of consultation, collaboration or control of the research by members of the public.

We are only collecting information about public involvement in research projects. This does not include public involvement in other activities, such as seminars, commissioning groups, or meetings.

Register here if you have not registered before and would like to add a research project for the first time.

Login here if you wish to edit your research project.


Last Updated 06/11/2009 16:53:54
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