References

Anitha, S., Chopra, P., Farouk, W., Haq, Q. and Khan, S. (2009) Participatory approaches in researching violence against women: Domestic Violence and South Asian women with no recourse to public funds. INVOLVE Spring 2009 Newsletter, page 8.

Brett, J., Staniszewska, S., Mockford, C., Seers, K., Herron-Marx, S. and Bayliss, H. (2010) The PIRICOM Study: A systematic review of the conceptualisation, measurement, impact and outcomes of patients and public involvement in health and social care research. London: UKCRC.

Broese, J., Zweekhorst, M., van Rensen, A. and de Hann, M. (2009) Involving burn survivors in agenda setting on burn research: An added value? Burns 36, pages 217-231.

Buckland, S. et al (2007) Public Information Pack (PIP). How to get actively involved in NHS, public health and social care research. INVOLVE, Eastleigh.

Denny, E. (2011) Endometriosis and cultural diversity: improving services for minority ethnic women. INVOLVE Research project database.

Department of Health NHS White Paper (2010) Equity and Excellence: Liberating the NHS published July 2010 [online] Crown

Dickson, I., McAlear, P., Wallace, A. and Forbat, L. (2011) Involving men affected by prostate cancer.  INVOLVE Autumn 2011 Newsletter, page 6.

Edwards, V., Wyatt, K., Logan, S. and Britten, N. (2011) Consulting parents about the design of a randomised controlled trial of osteopathy for children with cerebral palsy. Health Expectations volume 14 issue 4, pages 429-438

Faulkner, A. (2010) Changing our Worlds: Examples of user-controlled research in action. INVOLVE, Eastleigh

Fleming, J. (2010) An evaluation of a teenage pregnancy prevention strategy. In: Blackburn, H., Hanley, B. and Staley, K. Turning the pyramid upside down: examples of public involvement in social care research. Eastleigh: INVOLVE, pages 24-28

Greenfields, M. (2010) An assessment of the accommodation and health and social care needs of Gypsies and Travellers. In: Blackburn, H., Hanley, B. and Staley, K. Turning the pyramid upside down: examples of public involvement in social care research. Eastleigh: INVOLVE, pages 8-13

Hewlett, S., Wit, M., Richards, P., Quest, E., Hughes, R., Heiberg, T. and Kriwan, J. (2006) Patients and Professionals as research partners: Challenges, practicalities and benefits. Arthritis and Rheumatism, vol 55, no.4, pages 676-680

INVOLVE (2014) NIHR Senior Investigators: Leaders for patient and public involvement in research. INVOLVE, Eastleigh.

INVOLVE (2010) Payment for involvement: a guide for making payments to members of the public actively involved in NHS, public health and social care research. INVOLVE, Eastleigh.

INVOLVE (2012) Strategies for diversity and inclusion in public involvement: Supplement to the briefing notes for researchers. INVOLVE, Eastleigh.

INVOLVE (2013) Public involvement in National Institute for Health Research (NIHR) funding applications. INVOLVE, Eastleigh.

INVOLVE (2011) What you need to know about payment: an introductory guide for members of the public who are considering active involvement in NHS, public health or social care research. INVOLVE, Eastleigh.

Langston, A., McCallum, M., Campbell, M., Robertson, C. and Ralston, S. (2005) An integrated approach to consumer representation and involvement in a multicentre randomised controlled trial. Clinical trials, vol.2, no.1, pages 80-87

Mental Health Research Network and INVOLVE (2013) Budgeting for involvement: Practical advice on budgeting for actively involving the public in research studies. Mental Health Research Network, London and INVOLVE, Eastleigh.

National Institute for Health Research (NIHR) Annual Report (2009/10) Embedding health research. Published 30 July 2010 [online].

National Research Ethics Service and INVOLVE (2009) Patient and public involvement in research and research ethics committee review (Joint Statement). INVOLVE, Eastleigh

Neil, B. (2010) A study of adoption support services. In: Blackburn, H., Hanley, B. and Staley, K. Turning the pyramid upside down: examples of public involvement in social care research. INVOLVE: Eastleigh, pages 29- 35.

Petrie, S., Fiorelli, L. and O’Donnell, K. (2006) ‘If we help you what will change?’ Participatory research and young people. Journal of Social Welfare and Family Law, vol. 28, no. 1, pages 31-45.

Popay, J., Collins, M. et al (2013) PiiAF – The Public Involvement Impact Assessment Framework and Guidance website

Rees, R. and Oliver, S. (2007) An example from sexual health promotion. In Collection of examples of service user and carer participation in systematic reviews. Carr, S. and Cohen, E., Social Care Institute for Excellence (SCIE), London.

St George’s, University of London, Staff training package

Smith, E., Manthorpe, J., Brearley, S., Ross, F., Donovan, S., Sitzia, J. and Beresford, P. (2008) Service user involvement in nursing, midwifery and health visiting research: A review of evidence and practice. International Journal of Nursing Studies vol 45, pages 298-315

Staley, K. (2009) Exploring Impact: public involvement in NHS, public health and social care research. INVOLVE, Eastleigh.

Staniszweska, S., Jones, N., Newburn, M. and Marshall, S. (2007) User involvement in the development of a research bid: barrier, enablers and impacts. Health Expectations, 10 pages 173-183.

Sutton, J. and Weiss, M. (2008) Involving patients as advisors in pharmacy practice research: what are the benefits? International Journal of Pharmacy Practice volume 16, pages 231–238.

Swithenbank, L. (2010) Survey of carers of people with heart disease, Turning the pyramid upside down: examples of public involvement in social care research. INVOLVE, Eastleigh page 15.

Tarpey, M. (2006) Why people get involved in health and social care research: a working paper. INVOLVE, Eastleigh.

Tarpey M. (2011) Public involvement in research applications to the National Research Ethics Service. INVOLVE, Eastleigh.

Telford, R., Boote, J. and Cooper, C. (2004) What does it mean to involve consumers successfully in NHS research? A consensus study. Health Expectations, 7, pages 209-220.

Thomas L., Pearl G., Forshaw D., Dickinson H. and the ICONS Project Team (2010) Patient and public involvement in the ICONS: Identifying Continence OptioNs after Stroke study. INVOLVE Autumn 2010 Newsletter, page 6.

Turner, M and Beresford, P. (2005) User Controlled Research: its meanings and potential. INVOLVE, Eastleigh.

TwoCan Associates for the UK Clinical Research Collaboration and the National Cancer Research Institute (2010) Patient and public involvement (PPI) in research groups – Guidance for Chairs

Wright, D., Corner, J., Hopkinson, J. and Foster, C. (2007) The case for user involvement in research: the research priorities of cancer patients. Breast Cancer Research, vol. 9 (Suppl 2):S3.

Wright, D., Corner, J., Hopkinson, J. and Foster, C. (2006) Listening to the views of people affected by cancer about cancer research: An example of participatory research in setting the cancer research agenda. Health Expectations, vol 9, no.1, pages 3-12.