Groups and resources

National Institute for Health Research (NIHR) Clinical Research Network: Children
Details of their Young Person’s Advisory Group

Generation R
Generation R photo 2In September 2013, the NIHR Medicines for Children Research Network ran a groundbreaking event: Generation R. Generation R was conceived, written and run by their Young Person’s Advisory Group. The event sought to engage the life-sciences industry in the importance of children’s research and the invaluable role young people have to play in its development. Following the event a Generation R report was published and a series of videos

The National Young People’s Mental Health Advisory Group
The first National Young People’s Mental Health Advisory Group was established in January 2014 by the Clinical Research Network: Mental Health.

DECIPHer is the Centre for the Development and Evaluation of Complex Interventions for Public Health Improvement. They have a group of young people (ALPHA) aged 14-21 who advise their researchers on public health topics and their research.

National Children’s Bureau (NCB)
Includes information on a 2011 conference on young people’s involvement in research and projects involving children and young people, including:

Participation Works
Information on children and young people’s participation including downloadable versions of:

Children’s Research Centre
The Children’s Research Centre is based at the Open University. It aims to enable children and young people to have a research voice in society and to make valuable contributions to knowledge from their perspectives.

National Youth Agency Young Researchers Network
Resources include a toolkit to support young people-led research.

Children’s Rights Alliance for England (CRAE)
CRAE is a membership body for organisations and individuals committed to their vision: a society where the human rights of all children are recognised and realised. They have publications on children’s participation in decision making and rights.

‘This is my story’ – a two-minute animation of how Tom got involved in research. Tom and other children and young people share their experiences of being involved in research.

Top tips for involving children and young people in research – ranked by children and young people.

A longer document Involving children and young people in research: top tips and key issues including further information and resources

Reward and recognition for children and young people involved in research – things to consider – this new paper gives guidance on things to consider when planning involvement that includes young people. The London Generation R Young Persons Advisory Group (YPAG) at Great Ormond Street Hospital, helped to shape the content of this guidance.