King’s College London

Description

The King’s College London has a Stroke Research Patients and Family Group which was established in 2005. It brings together stroke researchers and people who have had a stroke and their family members who take part in the research. Current membership is about 35 and around 20 individuals regularly take part in the Group’s six-weekly meetings. The Group is convened by Dr Chris McKevitt.

Public involvement in research

Group activities include:

Discussion of proposed studies with researchers from within and outside King’s College London
Development and refinement of data collection methods for funded studies
Revision of patient information literature and consent forms for study participation
Contribution to data analysis
Development of ideas for new research projects answering questions which are important to people with stroke.
Guest speakers from other organisations including the Royal College of Physicians, the Stroke Association and the Department of Health
Planning and production of FORWARD, the newsletter for people on the South London Stroke Register
Group responses to relevant public consultations
Conference presentations, including INVOLVE conference and the UK Stroke Forum

Group members also participate in other user involvement activities, including lay reviewing for funding organisations, site visits for research and quality improvement, membership of steering and advisory groups for KCL and other studies.

http://www.kcl.ac.uk/medicine/research/divisions/hscr/research/groups/stroke/forpatientsandfamily/patientsandfamily.aspx

Location Get directions to this organisation

Capital House, 42 Weston Street, London SE1 3QD

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Key Contact

Christopher McKevitt, Professor of Social Sciences & Health
Email: christopher.mckevitt@kcl.ac.uk
Tel: 020 78486628
Website: http://www.kcl.ac.uk/medicine/research/divisions/hscr/research/groups/stroke/forpatientsandfamily/patientsandfamily.aspx

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Coverage

South London

National Institute for Health Research Networks

NIHR Biomedical Research Units and Centres - View other organisations in this network There are 11 Biomedical Research Centres which drive progress on innovation and translational research in biomedicine into NHS practice. There are 20 Biomedical Research Units which undertake translational clinical research in priority areas of high disease burden and clinical need

NIHR Clinical Research Networks (CRN) - View other organisations in this network The Clinical Research Networks support clinical research in the NHS in England and make it possible for all patients and health professionals across England to participate in relevant clinical trials.

NIHR Research Design Services - View other organisations in this network There are 10 Research Design Services based around the country. They support researchers to prepare proposals for submission to NIHR and other national, peer-reviewed funding competitions for applied health or social care research by providing expert advice on research design and methodology.

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