Our links page includes details of research websites and organisations that might be helpful for researchers and members of the public who have an interest in active public involvement in research.
The links can be searched by clicking on one of the letters below or browsing all links.
If you would like us to add a link to your website, you’ll find a form and information on the type of links we publish on our Add your link page.
INVOLVE is not responsible for the content or reliability of the linked websites and does not necessarily endorse the views expressed within them.
Our Research Involvement Network is a group of people who each have a personal connection to pancreatic cancer, including patients, carers, loved ones and survivors. The group has a diverse range of views and experiences and can provide researchers with insights that inform and shape their work. This ensures that only the highest quality research is being conducted.
The Partnership for Research in Chronic Fatigue Syndrome and Myalgic Encephalopathy (PRIME) Project was a collaboration between patients, carers, researchers and service providers who wanted to improve our understanding of Myalgic Encephalopathy (ME) / Chronic Fatigue Syndrome (CFS). This website provides access to a database of PRIME research material for use by people living with ME/CFS, and those that care for and treat them.
Patients Active in Research promotes partnerships between patients, carers, other members of the public, and medical researchers in the Thames Valley. It has been developed with patients and aims to ensure that medical research focuses on what really matters to those affected by ill health and is carried out in ways that encourage them to take part.
The Peninsula Cerebra Research Unit for Childhood Disability Research (PenCRU) responds to questions from families about therapies and health services for children and young people affected by disability or who have special or additional health needs. PenCRU provides summaries of the evidence to help families make decisions. Where the evidence is lacking it seeks funding to conduct clinical trials to assess the effectiveness of interventions. PenCRU involves families affected by childhood disability in all aspects of its research and related activities.
People in Research helps members of the public make contact with organisations that want to actively involve them in clinical research. For example this could be by helping to decide what gets researched or possibly carrying out part of the research.
Public Health England (PHE) works with national and local government, industry and the NHS to protect and improve the nation’s health and support healthier choices. They work to address inequalities by focusing on removing barriers to good health. PHE is an executive agency of the Department of Health.
PEAR – which stands for Public Health, Education, Awareness, Research – was an National Children’s Bureau Research Centre project supporting young people’s involvement in public health research. The project ran from 2008 to 2010, supported by the Wellcome Trust. The PEAR project has now finished, but you can find out about its work and access resources on these webpages.