Blog Archives

Training and support for PPI in research: What have your experiences been?

Abstract: In this interactive poster display, we present some of the current issues around training and support for public involvement in research and invite you to submit your experiences and views. We are aware that this is an area where many centres are looking for...

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Health Education Reaching Out (HERO) Projects exemplify PPI as a catalyst to improved outcomes not an inhibitor

Abstract: HERO works with students, teachers and health professionals to investigate the best ways of getting health messages across to young people, communities, patients and their families. Active patient and public participation is a significant component of all HERO projects. This presentation will illustrate the...

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Patient and Public Involvement (PPI) Groups: Is there a right or wrong model?

Abstract: Within NIHR CLAHRC for LNR we have two PPI groups with distinct memberships and ways of working. I will compare and contrast these groups and provide an overview of who is involved as well as their function, structure, method of operation, achievements and future...

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STOP Chronic Back Pain! Self management and timely intervention: An opportunity for the prevention of chronic back pain

Abstract: Our innovation study involved service users in planning, implementing and evaluating a pain management programme for people with back pain. Our novel approach offered early access to pain management aiming to prevent pain from becoming chronic. Components of the programme were psychology, physiotherapy, occupational...

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Involving service users as co-learners in research about quality improvement, interprofessional education and back pain: The service user perspective

Abstract: Personal experience of service users who are involved in research is rarely reported in study findings. We describe an exploration of service user involvement that builds on a larger study evaluating an interprofessional educational initiative. Specifically primary health care teams worked alongside service users...

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Using an online survey to paint a picture of service user involvement in the field of Healthcare Associated Infection Research

Abstract: This poster will present the results of an online questionnaire survey of researchers working in the field of Healthcare Associated Infections. The survey asks participants to provide data on: the level and types of patient and public involvement (PPI) included in current and recent...

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Working collaboratively while recognising differences: Regional collaboration in PPI (Patient and Public Involvement) in the East of England

Abstract: Many different organisations work within the sphere of patient and public involvement (PPI) in the East of England. Many of the organisations have distinct roles within PPI and yet some of these roles, especially within the sphere of training and support, tend to overlap....

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Involvement in Research for Patient Benefit: Development of PPI throughout the programme’s history

Abstract: The Research for Patient Benefit (RfPB) programme is one of the National Institute for Health Research funding schemes, which funds regionally derived research projects in health services and social care. Launched in 2006, the programme has been in operation for over five years now....

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A patient advisory board: Improving breast cancer clinical trials

Abstract: The Dutch Cancer Society (KWF) and the Breast Cancer Study Group (BOOG) believe that design and execution of clinical trials can be improved when patients become actively involved. A qualitative study is conducted – involving breast cancer patients, researchers and stakeholder organisations – to...

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Collaborative research and development of PsyConnect: An online support tool for mental health recovery

Abstract: PsyConnect is a collaborative research project that is adapting, implementing and evaluating a diagnosis-independent online tool in mental health. PsyConnect aims to support service users in articulating their values, objectives and concerns in ways that also help providers in adapting their expertise in relevant...

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