2012 Conference

Abstract:
Chronic Kidney Disease affects 7-8% of the population. Most have mild to moderate disease but increased cardio-vascular risk and are looked after in the community. People with early CKD are unaware that they can self-manage their condition and/or their healthcare practitioners may be unskilled in how best to support self-care. Our project aims to improve the variability in managing CKD using a quality improvement intervention called a care bundle (set of evidence-based activities grouped together and carried out at the same time). Our bundle comprises three clinical interventions, plus one self-management intervention developed and delivered by our Patient Advisory Group.

26 GP Practices received self-management training, with 253 patients (72% of those asked) utilising the self-management packages. 

Learning and discussion from the paper includes:

  • the development, content, and delivery by patients of a training session for practitioners on facilitating self-management.
  • a self-management package for people who have CKD: self efficacy.
  • questionnaire; educational materials for different learning styles; prompt sheet to address patients’ concerns at consultation; group education.
  • the Patient Advisory Group; challenges in practitioner behaviour; financial considerations for practices; qualitative evaluation showing practices highly valued self-management training by patients; what people with CKD gained from this unique approach.

Patient involvement in Quality Improvement

Authors

Loud ~ Fiona

Director, Kidney Alliance and lead of ENABLE Patient Team, supported by Kidney Research UK and the Health Foundation. Fiona Loud is a kidney patient working in kidney care. She is Director of the Kidney Alliance, an umbrella organisation bringing together patients and professionals. She is Lay Chair of her local Organ Donation Committee and Chair of her local Kidney Patient Association.

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