Where to go for further information

INVOLVE Resources

All of our publications and resources are freely available to view or download from the INVOLVE website.

INVOLVE Putting it into practice database: a database of references including:

• guidance on good practice
• reports of the lessons learnt from direct experience of involvement
• descriptions of involvement in research projects.

INVOLVE Evidence library: a database of references on the impact, nature and extent of and reflections on public involvement in research.

National Institute for Health Research (NIHR) Research Design Service (RDS)

NIHR Research Design Service (RDS) supports researchers to develop research proposals for submission to the NIHR and other national, peer-reviewed funding competitions for applied health or social care research. This includes giving advice on patient and public involvement in the development of proposals.

There are ten NIHR Research Design Services:

• East of England 
• East Midlands 
• London 
• North East
• North West 
• South Central 
• South East
• South West 
• West Midlands
• Yorkshire and the Humber

National Institute for Health Research (NIHR) Clinical Research Networks

NIHR Cancer Research Network – including information on the National Cancer Research Institute Consumer Liaison Group

NIHR Dementias & Neurodegenerative Diseases Research Network – information on public involvement in dementia and neurodegenerative disease research

NIHR Diabetes Research Network – information on public involvement in diabetes research

NIHR Medicines for Children Research Network – information on involving young people and parents in research

NIHR Mental Health Research Network - information for researchers on involving people with experience of mental health problems

NIHR Stroke Research Network – information on public involvement in stroke research

Other resources and information

Involving London – information on public involvement and how you can get involved in research in the London area

Involving users in the research process – leaflet produced by Guy’s and St. Thomas’ and King’s College London Biomedical Research Centre

North West People in Research Forum – an organisation supporting patient and public involvement and engagement in the North West

Handbook of service user involvement in nursing and healthcare research – Elizabeth Morrow, Annette Boaz, Sally Brearley and Fiona Ross – a book published 2012

User involvement in research: A route map. TwoCan Associates – for organisations who commission or fund research and want to involve service users in their work

References in the Briefing notes