INVOLVE conference
« Go backINVOLVE holds a national conference every other year to bring together people with a common interest in public involvement in NHS, public health and social care research. This includes members of the public, service users, researchers, research commissioners and representatives of voluntary sector organisations. The aim of the INVOLVE conference is to encourage the sharing of knowledge and learning.
The INVOLVE 2012 conference will be held at the East Midlands Conference Centre in Nottingham on Tuesday 13th and Wednesday 14th November 2012. We will advertise for conference presentations in January 2012.
You can search our database for abstracts and presentations from our conferences held in 2004, 2006, 2008 and 2010.
There are three filter options for searching the presentations. However unless you know exactly what you are looking for it might be easiest to search under the individual categories rather than across all three filter options. Presentations that have a powerpoint available will have a download button.
If you would like to browse choose the year that you are interested in and keep the other search filters blank.
If you are interested in a particular author then filter by author only.
The filter by type option allows you to further define your search to identify if the presentations were workshops, talks or posters sessions.

Making a Difference: How the Alzheimer’s Society QRD Consumer network do it!
2004
Nurock Shirley
The Alzheimer’s Society Quality Research in Dementia (QRD) award-winning research grants programme involves consumers in all stages of the Research Cycle. Today a small group of QRD members, in emphasising the Identifying & Prioritising part of The Research Cycle, will …
Influencing the research agenda ? findings from an independent evaluation of a Cancer Network Consumer Research Panel
2004
Cooper Cindy
Development of a local Cancer Network Consumer Research Panel started in April 2002. The aim of the panel was to support and train consumers to be involved in cancer research at all stages of the research process. This paper presents …
Download Influencing the research agenda ? findings from an independent evaluation of a Cancer Network Consumer Research PanelEstablishing user-led research in mental health in Hull and East Riding: How to initiate and commission research
2004
Shields Graham
This paper is part of an evaluation undertaken into the attempt by the Trust to set up a structure to promote and commission user-led research. I propose to start by providing an introduction to the sort of research which we …
User involvement in the development of research bids
2004
Jones Nicola, Staniszewska Sophie
The paper documents the process of involving users in the development of a research bid. This bid was developed by a collaboration between the Warwickshire National Childbirth Trust Pre-term Support Group, the National Childbirth Trust, Bliss, the premature baby charity …
The right representatives: Recruiting the best for your research
2004
North Jenny
A presentation and explanation of the Maternity Alliance’s User Representation Recruitment and Evaluation Tools, designed to help organisations to recruit consumers/users/lay representatives to steering/working groups and committees. These representatives add great value to research projects. However, our experience told us …
Models for learning: Making learning work in a diverse group of research projects
2004
Hovard Linsey
This presentation will describe a support programme for consumer involvement in research and consider its value by comparing it with other learning models. It will focus on the conference theme of ‘designing and managing’ learning programmes for consumer involvement. In …
Developing partnerships for research: Training workshops for service users, carers workers and researchers
2004
Bentley Kris
We will report on the development and evaluation of a series of five ESRC funded workshops designed to explore and develop collaborative working in mental health research. Through the workshops we aimed to provide participants with an introduction to the …
Download Developing partnerships for research: Training workshops for service users, carers workers and researchersTrials, tribulations and joys of co-researching with young service users
2004
McLaughlin Hugh
The paper is based on part of the experience of undertaking a national evaluation of the NSPCC’s Young People’s Centres (YPC’s) using young people as co-researchers. The NSPCC were keen to put young people, as consumers of services, at the …
Fairytales and failures – lessons from the ‘Collaborative Research Project’: Service users, nurses and researchers working together
2004
Hicks Alice, Jackson Ann, Jones Julia
The ‘Collaborative Project’ carried out a UK survey of researchers, to explore the topic and nature of collaborative research. 37 projects were categorised and invited to participate in follow-up telephone interviews. This qualitative data revealed the nature and extent of …
Download Fairytales and failures – lessons from the ‘Collaborative Research Project’: Service users, nurses and researchers working togetherOlder people: Doing research for ourselves
2004
Holder Fran, Taylor Sam
The paper will provide an overview of an innovative project, ‘The Older People’s Project Support’ study (OPPS) which aims to develop a model of older people’s involvement in their own research. The emphasis of the paper will be on Older …

