INVOLVE conference

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INVOLVE holds a national conference every other year to bring together people with a common interest in public involvement in NHS, public health and social care research. This includes members of the public, service users, researchers, research commissioners and representatives of voluntary sector organisations. The aim of the INVOLVE conference is to encourage the sharing of knowledge and learning.

INVOLVE 2012  Conference abstracts and presentations are now available.

Search the database below for abstracts and presentations from all our conferences held in 2004, 2006, 2008, 2010 and 2012. 

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Training and support for PPI in research: What have your experiences been?

2012 Conference

Authors: Laurie ~ Linda, Wellings ~ Amander

Abstract: In this interactive poster display, we present some of the current issues around training and support for public involvement in research and invite you to submit your experiences and views. We are aware that this is an area where many centres are looking for support and guidance to develop appropriate approaches. This is one of the most persistent issues...Read More >>


Health Education Reaching Out (HERO) Projects exemplify PPI as a catalyst to improved outcomes not an inhibitor

2012 Conference

Authors: Barwell ~ Julian, Cashmore ~ Annette, Singletary ~ Joanne, Suter-Giorgini ~ Nicola, Wray ~ Paula

Abstract: HERO works with students, teachers and health professionals to investigate the best ways of getting health messages across to young people, communities, patients and their families. Active patient and public participation is a significant component of all HERO projects. This presentation will illustrate the different opportunities for stakeholder involvement showing how they can affect research design through to identifying...Read More >>


Patient and Public Involvement (PPI) Groups: Is there a right or wrong model?

2012 Conference

Authors: Wray ~ Paula

Abstract: Within NIHR CLAHRC for LNR we have two PPI groups with distinct memberships and ways of working. I will compare and contrast these groups and provide an overview of who is involved as well as their function, structure, method of operation, achievements and future plans. Both groups have the shared goal of ensuring that the patient and public perspective...Read More >>


STOP Chronic Back Pain! Self management and timely intervention: An opportunity for the prevention of chronic back pain

2012 Conference

Authors: Carr ~ Caroline, Das ~ Meherzin, Phillips ~ Christopher, Worswick ~ Louise

Abstract: Our innovation study involved service users in planning, implementing and evaluating a pain management programme for people with back pain. Our novel approach offered early access to pain management aiming to prevent pain from becoming chronic. Components of the programme were psychology, physiotherapy, occupational therapy, relaxation and medical input. Additional tiers of peer support were provided by service users...Read More >>


Involving service users as co-learners in research about quality improvement, interprofessional education and back pain: The service user perspective

2012 Conference

Authors: Carr ~ Eloise, Little ~ Chris, Ryan ~ Kath, Worswick ~ Louise

Abstract: Personal experience of service users who are involved in research is rarely reported in study findings. We describe an exploration of service user involvement that builds on a larger study evaluating an interprofessional educational initiative. Specifically primary health care teams worked alongside service users to learn about quality improvement and implementation. Semi structured interviews with nine service users were...Read More >>


Using an online survey to paint a picture of service user involvement in the field of Healthcare Associated Infection Research

2012 Conference

Authors: Whitfield ~ Andrea

Abstract: This poster will present the results of an online questionnaire survey of researchers working in the field of Healthcare Associated Infections. The survey asks participants to provide data on: the level and types of patient and public involvement (PPI) included in current and recent research; researchers’ experiences of PPI; perspectives on the benefits and challenges in involving the public;...Read More >>


Working collaboratively while recognising differences: Regional collaboration in PPI (Patient and Public Involvement) in the East of England

2012 Conference

Authors: Romero ~ Jacqueline, Tembo ~ Doreen, Waddingham ~ Paula, Wilson ~ Patricia

Abstract: Many different organisations work within the sphere of patient and public involvement (PPI) in the East of England. Many of the organisations have distinct roles within PPI and yet some of these roles, especially within the sphere of training and support, tend to overlap. The different organisations also tend to have access to specialised knowledge and resources. It is...Read More >>


Involvement in Research for Patient Benefit: Development of PPI throughout the programme’s history

2012 Conference

Authors: Hejdenberg ~ Jennie, Taylor ~ Ciorsdan

Abstract: The Research for Patient Benefit (RfPB) programme is one of the National Institute for Health Research funding schemes, which funds regionally derived research projects in health services and social care. Launched in 2006, the programme has been in operation for over five years now. Patient and public involvement (PPI) has been embedded in the programme since its inception; however...Read More >>


A patient advisory board: Improving breast cancer clinical trials

2012 Conference

Authors: Elberse ~ Janneke, Tax ~ Sofie

Abstract: The Dutch Cancer Society (KWF) and the Breast Cancer Study Group (BOOG) believe that design and execution of clinical trials can be improved when patients become actively involved. A qualitative study is conducted – involving breast cancer patients, researchers and stakeholder organisations – to explore possibilities for active patient involvement in breast cancer clinical trials. An advisory committee of...Read More >>


Collaborative research and development of PsyConnect: An online support tool for mental health recovery

2012 Conference

Authors: Eng ~ Lillian Sofie, Strand ~ Monica

Abstract: PsyConnect is a collaborative research project that is adapting, implementing and evaluating a diagnosis-independent online tool in mental health. PsyConnect aims to support service users in articulating their values, objectives and concerns in ways that also help providers in adapting their expertise in relevant and individualised ways. The tool can be used through all phases of recovery processes and...Read More >>


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