This jargon buster or glossary of words contains the definitions of some of the terms commonly used in public involvement in research. It is not a complete list of all the words you might come across. The original definitions were developed for INVOLVE by TwoCan Associates working in consultation with a panel of researchers and a panel of people who use services, and we add to them continually.
The jargon buster can be searched by clicking on one of the letters below or browsing all terms.
A study in which the investigators do not seek to intervene, but simply observe the course of events. There is a greater risk of selection bias than in experimental studies.
Other Government Departments
Describes a clinical trial in which masking is not used. That means that all parties involved with the trial know which participants have been assigned which interventions.
The Office for Strategic Coordination of Health Research (UK wide)
A component of a participant’s clinical and functional status after an intervention has been applied, that is used to assess the effectiveness of an intervention.
Outcome measures are measurements of the effects of a treatment or service. They might include physical measurements – for example measuring blood pressure, or psychological measurements – for example measuring people’s sense of well-being. So if someone takes part in research, they may be asked questions, or they may be asked to have extra tests to assess how well the treatment or service has worked.
Published results from a research project. NETS projects often generate papers that are published in the scientific literature. Full details of NETS projects and their results are published in special reports or journals. Some projects generate briefing papers or other outputs for particular audiences.