The local researchers interviewed and collected the views of both individuals and groups from 5 major ethnic minority groups in the area via focus groups, individual interviews versus questionnaires. As well as collecting information about experiences and focus of crime . People were asked to suggest solutions to the many issues faced by the community.
Author: Jennie Fleming - Centre for Social Action
Tel: 0116 257 7777. Email: firstname.lastname@example.org
The study seeks to explore asthma patients' preferences regarding participation making in treatment decisions. It also seeks to identify those areas in which patients are most desirous of receiving information regarding their asthma. The study has two phases - phase 1 (qualitative) used interviews (N=32) to identify items for inclusion in a questionnaire (after Degner et al 1998) and to test the transferability of a set of sort cards (originally designed for use with cancer patients, Degner et al 1997). Phase 2 will use the questionnaire and sort cards to explore preferences and information needs in a larger sample (N approx 250) of patients. These data will be analysed using Coombs and Thurstonian approaches. The study will yield greater understanding of patients' participation preferences and information needs. It will also give rise to two instruments (after Degner et al 1997,1998) for use with asthma patients.
Degner LF, SloanJA and Venkatesh P (1997) The Control Preference Scale Canadian Journal of Nursing Research 29 (3) 21-43 Degner LF, DavisonBJ, Sloan JA and Mueller B (1998) Development of a scale to measure information needs in cancer care Journal of Nursing Measurement 6(2)137-53
Author: Ann-Louise Caress - School of Nursing, Midwifery and Health Visiting, University of Manchester
Tel: 0161 275 5307/5346. Email: email@example.com
Randomised Control Trial carried out throughout the North of England.
Author: David Jones - University of Newcastle, Centre for Liver Research
Tel: 0191 22256784.
A large simple real-life open label RCT of the clinical and cost-effectiveness of classes of drugs, with clinicians free to choose the type of drug within each classes. Primary outcome measure is PDQ-39 - a patient orientated PD specific health-related quality of life instrument. Setting will be hospital, neurology and geriatric out-patients clinics.
Author: Birmingham Clinical Trials Unit
Tel: 0121 687 2314. Email: PD-TRIALS@ bham.ac.uk
An open RCT of early surgery ( STN stimulation or lesioning) versus medical therapy (often using continuous apomorhpine) with surgery deferred for as long as possible. Primary outcome measure is PDQ-39, a patient orientated PD-specific health-related quality of life instrument. Setting will be in neurology and neurosurgical units of major hospitals.
Author: University of Birmingham Clinical Trials Unit
The aim of this project was to develop a website about mental health clinical trials in the UK for mental health service users, their families, friends and carers as well as the general public, in order to:
1. improve knowledge and communication and to help people to make informed choices about whether to join a clinical trial
2. contribute to a better understanding of mental health research by the public, and addressing public mistrust
3. give information about current research and time scales etc., thereby reaching potential participants
4. improve partnership working between researchers and service users and carers
Author: U Hla Htay
Mental Health Service Users interviewing and sending out questionnaires to users of a crisis house and telephone helpline
Author: Jenny Gray - HUBB Mental Health User Group
Tel: 0208 590 2666. Email: firstname.lastname@example.org
The design will be exploratory and descriptive involving 21 multi-gravid women. Consent will be sought from the women for their participation in the study and anonymity will be guaranteed. The women will keep an audio-taped diary for 10 days following birth and will be encouraged to talk freely about their own experience of uninterrupted skin-to-skin contact. The researcher will attend a closure visit on the tenth post-natal day. All interviews and audio-taped diaries will be transcribed verbatim and the transcripts will be returned to the women for verification.
Author: Val Finigan - Pennine Acute NHS Hospitals trust
Tel: 07968 690898. Email: email@example.com
Following training of the young co-researchers we visited 5 Young People's Centres to interview young people, and staff; to undertake focus groups with staff members and read any secondary data. We also undertook a 'ghostshopper exercise' with a telephone referral to each of the YPC's and national helpline. This data was then analysed, written up and disseminated- including a conference facilitated by the co-researchers.
Author: Hugh McLaughlin - School of Community, Health Sciences and Social CareUniversity of Salford
Tel: 01612950727. Email: firstname.lastname@example.org
This research is based in three general practices in Battersea, South West London. It involves parents, supported by a research team, collecting qualitative data about what other parents feel about child health surveillance programmes offered by health professionals - specifically, programmes and checks that are offered in the first year of a child's life. Three lead parents have been trained in focus group facilitation, transcription and analysis techniques and they are working with a research assistant who will conduct in-depth interviews on an individual basis with additional participants. The results will be fed back to local healthcare providers, parents, local commissioning groups, local, regional and national support groups and the DHSC via groups such as the Children's Taskforce etc.
Author: Amy Scammell - Battersea Research Group
Tel: 020 7223 4222. Email: email@example.com