Title: CATH-B Study (Chinese community Access to Treatment for Hepatitis B)
Project timescale: From 01 February, 2014 to 30 September, 2015 (Added to website on: 25 February, 2014 - Date last updated: 25 March, 2014)
Source of funding: Policy Research Programme
Aims: The research team aims to answer the following question:
What are the existing barriers for access to diagnosis and treatment of chronic hepatitis B in the Chinese and Far East Asian population in South Yorkshire?
Themes that the study aims to identify are:
1. Barriers/facilitators related to the community
2. Barriers/facilitators related to healthcare practitioners
3. Barriers/facilitators related to the health system commissioning and policy
Research designs used:Study of views/experiences
Methods used to collect data: Focus groupsInterviewsOther (please specify): Workshop for consultation and dissemination
Research project description: This study aims to identify drivers for the gap in healthcare access and provision for Chinese residents living in the UK by discussions with the community and health practitioners serving them.
Methods: focus group discussions and key informant interviews will be used to identify themes in the community and face-to-face or telephone interviews will be used to identify common themes in health practitioners.
Identifying common themes will inform efforts to design and evaluate support tools for the community and practitioners involved, and help to formulate policy to address service gaps.
Stages at which the public were involved: Designing the research instruments (eg questionnaires, patient information sheets)Assisting in finding and designing appropriate ways of approaching participants
Description of public involvement in research stages: Chinese National Living Centre and Scottish Huntington’s Lothian provided one representative each to the Research Advisory Group; Patient and Public Involvement (PPI) members contributed to the design of information and consent forms. Sheffield Chinese Community Centre provided space and links for a consultation workshop and took part in the Research Fellow interview panel.
Training and support provided for either members of the public or researchers involved in the project: The PPI members received training through the Comprehensive Local Research Network (CLRN) by way of introduction to research and what contribution is expected; they also participated in basics of hepatitis B and study design and implementation lecture and discussion.
Examples of ways the public have made a difference to the research project: The project has just started but we have already received invaluable advice from the PPI members on the information sheets and through consultation with members of the community on how to recruit and how the results can be disseminated. We can provide more information after the advisory group meets on 5 March 2014.
Evaluating the impact of public involvement in the research:
Details of publications or reports resulting from the research:
Was/is your project user controlled: No
For further information on the project, please contact:Dr Alicia VedioLead ResearcherSheffield Teaching Hospitals NHS Foundation TrustGlossop RoadSheffieldS10 2JFUnited Kingdomalicia.firstname.lastname@example.org
Each entry has been written by the individual project and although care has been taken in compiling, checking and updating the information on this site INVOLVE and the National Institute for Health Research (NIHR) cannot guarantee its correctness and completeness. We do not accept responsibility for any loss, damage or expense resulting from the use of this information.