Links
Our links page includes details of research websites and organisations that might be helpful for researchers and members of the public who have an interest in active public involvement in research.
INVOLVE is not responsible for the content or reliability of the linked websites and does not necessarily endorse the views expressed within them.
The links can be searched by clicking on one of the letters below or browsing all links.
If you would like us to add a link to your website, you will find a form and criteria for inclusion on our ‘Add your link‘ page.
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Alzheimer’s Society Research Network
Alzheimer’s Society Research Network is a team of carers, former carers and people with dementia who play an integral role in the research programme.
Go to www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=1109Bradford Alliance on Community Care (BACC)
Bradford Alliance on Community Care (BACC) was set up in 1989 by community and voluntary groups and organisations to strengthen the voices of community care service users and carers in the planning of health and social care services across the Bradford Metropolitan District.
Go to www.bacc.uk.comCancer Voices Network
Cancer Voices is a UK-wide network of people affected by cancer who are helping to shape the future of cancer care supported by Macmillan Cancer Support.
Go to opportunities.macmillan.org.uk/p_homepage.aspxCentre for Mental Health
Centre for Mental Health aims to help to create a society in which people with mental health problems enjoy equal chances in life to those without. It carries out research, policy work and analysis to improve practice and influence policy in mental health as well as public services.
Go to www.centreformentalhealth.org.ukCochrane Consumer Network (CCNet)
The Cochrane Consumer Network (CCNet) exists to support health care users, their parents and carers learn about evidence-based healthcare. It encourages consumers throughout the world to give their perspectives and help set priorities for health care. CCNet promotes user input into and acceptance of evidence-based healthcare to guide well-informed decisions about health care.
Go to consumers.cochrane.orgCochrane Library
The Cochrane Library is a collection of six databases that contain different types of high-quality, independent evidence to inform healthcare decision-making, and a seventh database that provides information about groups in The Cochrane Collaboration. The Cochrane Library includes: the Cochrane Database of Systematic Reviews, the Database of Abstracts of Reviews of Effects and the Cochrane Central Register of Controlled Trials.
Go to www.thecochranelibrary.com/view/0/index.htmlContact, Help, Advice and Information Network (CHAIN)
Contact, Help, Advice and Information Network (CHAIN) is an online mutual support network for people working in health and social care. It is based around specific areas of interest, and gives people a simple and informal way of contacting each other to exchange ideas and share knowledge.
Go to chain.ulcc.ac.uk/chain/index.htmlDepartment of Health
This site contains material produced by and for the Department of Health. It includes press releases and details of Department of Health publications, as well as information about the Department of Health and NHS Executive.
Go to www.dh.gov.ukEQUATOR Network
The EQUATOR Network is an international initiative that seeks to enhance reliability and value of medical research literature by promoting transparent and accurate reporting of research studies.
Go to www.equator-network.org/homeExperimental Cancer Medicine Centre Network (ECMC) Patients & Public pages
Launched in October 2006, the Experimental Cancer Medicine Centre (ECMC) Network is jointly supported by Cancer Research UK and the Departments of Health for England, Scotland, Wales and Northern Ireland, to fund a network of Experimental Cancer Medicine Centres across the UK. The goal of the ECMC Network initiative is to drive the development of new therapies to bring benefits to patients faster.
Go to www.ecmcnetwork.org.uk/patients-publicFolk.us
Folk.us works to support and develop patient, service user and carer involvement in health and social care research activities to ensure that those who use services and those who care for those who use services inform and guide research at all stages.
Go to www.folkus.org.ukHealth Research Authority (HRA)
The Health Research Authority (HRA) is an NHS organisation which was established on 1 December 2011 as a Special Health Authority. The purpose of the HRA is to protect and promote the interests of patients and the public in health research.
Go to www.nres.nhs.uk/hra/Healthcare-Associated Infection (HCAI) Service Users Research Forum (SURF)
Funded by the Department of Health and managed by the National Healthcare-Associated Infection Research Network (HCAI RN), Service Users Research Forum (SURF) provides a forum for members of the public to find out more about HCAI research and supports their involvement by ensuring they are able to make a valid and meaningful contribution to the research process. SURF also provides an opportunity for researchers and healthcare professionals to work in collaboration with service users, their carers and members of the public to improve current research, widely disseminate findings and identify the most important areas for future research.
Go to www.hcaisurf.org/Healthtalkonline
Healthtalkonline, run by the DIPEx charity, lets you share in other people’s experiences of health-related conditions and illnesses. You can watch video or listen to audio clips of the interviews, read about people’s experiences and find information about conditions, treatment choices and support.
Go to www.healthtalkonline.orgIndependent Cancer Patients’ Voice (ICPV)
Independent Cancer Patients’ Voice (ICPV) is a patient advocate group led by patients for patients. We believe that clinical research is improved by patients being partners with clinicians and healthcare professionals, rather than passive recipients of healthcare. By bringing the views and experience of cancer patients, their family and carers, to the cancer research community, we aim to improve outcomes and develop new treatments for every cancer patient.
Go to www.independentcancerpatientsvoice.org.ukJames Lind Alliance (JLA)
The James Lind Alliance (JLA) is a non-profit making initiative which was established in 2004. It brings patients, carers and clinicians together to identify and prioritise the top 10 uncertainties, or ‘unanswered questions’, about the effects of treatments that they agree are most important.
Go to www.lindalliance.orgJoseph Rowntree Foundation
The Joseph Rowntree Foundation is an endowed charity that funds a large, UK-wide research and development programme. It seeks to understand the root causes of social problems, to identify ways of overcoming them, and to show how social needs can be met in practice.
Go to www.jrf.org.ukKing’s Fund
The King’s Fund is a charity that seeks to understand how the health system in England can be improved. It works with individuals and organisations to shape policy, transform services and bring about behaviour change.
Go to www.kingsfund.org.ukMethodology Research Programme
The Methodology Research Programme (MRP) supports the development of new and improved systems and theories for health research. £16m of funding has been awarded to establish a network of seven new centres dedicated to methodology research. The programme is jointly funded by the National Institute for Health Research (NIHR) and the Medical Research Council (MRC) and is managed by the MRC on behalf of the NIHR-MRC partnership.
Go to www.mrc.ac.uk/Ourresearch/ResearchInitiatives/MRP/MRC004214Multiple Sclerosis Society Research Network
The Multiple Sclerosis (MS) Society Research Network helps the MS Society make sure that the research it funds reflects the needs and interests of people living with MS. The Research Network also helps make sure that research is communicated in a way that is accessible to everyone in the MS community. It is open to anyone interested in research who has experience of living with MS or caring for someone with MS.
Go to live.mssociety.org.uk/ms-research/get-involved-research/research-network- Page 1 of 4
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