Our links page includes details of research websites and organisations that might be helpful for researchers and members of the public who have an interest in active public involvement in research.
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The National Health Service Research and Development (R&D) Forum is a network for those involved in managing and supporting R&D in health and social care. The Forum aims to improve the environment for health research by facilitating and encouraging sharing of best practice, and working with other organisations. Membership of the Forum is free and open to anyone involved in or interested in managing and planning research and development in the NHS.Go to www.rdforum.nhs.uk/
The National Institute for Health and Clinical Excellence (NICE) provides guidance, sets quality standards and manages a national database to improve people’s health and prevent and treat ill health. NICE involves patients, carers and the public in the development of its guidance and other products.Go to www.nice.org.uk/getinvolved/patientsandpublic/patientandpublichome.jsp
The goal of the National Institute for Health Research (NIHR) is to create a health research system in which the NHS supports outstanding individuals, working in world class facilities, conducting leading edge research focused on the needs of patients and the public. The Institute manages its activities through four main work strands: NIHR Faculty supporting the individuals carrying out and participating in research; NIHR Research commissioning and funding research; NIHR Infrastructure providing the facilities for a thriving research environment; and NIHR Systems creating unified, streamlined and simple knowledge management systems.Go to www.nihr.ac.uk
The National Institute for Health Research (NIHR) Biomedical Research Units (BRUs) undertake translational clinical research in priority areas of high disease burden and clinical need. The BRUs are based in leading NHS organisations and universities enabling some of our best health researchers and clinicians to work together to develop new treatments for the benefit of patients.Go to www.nihr.ac.uk/infrastructure/Pages/infrastructure_biomedical_research_units.aspx
The National Institute for Health Research Cancer Research Network (NCRN) provides researchers with the practical support they need to make cancer clinical studies happen in the NHS, so that more research takes place across England, and more patients can take part.Go to www.ncrn.org.uk
The Central Commissioning Facility (CCF) manages the following NIHR research programmes: Programme Grants for Applied Research; Programme Development Grants; Research for Patient Benefit (RfPB); and Invention for Innovation (i4i). Patient and public involvement is core to CCF’s review and commissioning process.Go to www.nihr-ccf.org.uk
The Centre for Reviews and Dissemination is part of the National Institute for Health Research (NIHR) and is a department of the University of York. We provide research-based information about the effects of health and social care interventions via our databases and undertake systematic reviews evaluating the research evidence on health and public health questions of national and international importance. The findings of our research outputs are widely disseminated and have impacted on health care policy and practice, both in the UK and internationally.Go to www.york.ac.uk/inst/crd/about_us.htm
The NIHR Clinical Research Network makes it possible for all patients and health professionals across England to participate in relevant clinical trials. Six topic networks coordinate trials for specific conditions: cancer, dementias and neurodegenerative diseases, diabetes, medicines for children, mental health and stroke. The Primary Care Research Network supports research in this part of the health service while the Comprehensive Clinical Research Network covers all other disease areas. The work of all the Research Networks is coordinated through the NIHR Clinical Research Network Coordinating Centre.Go to www.crncc.nihr.ac.uk
National Institute for Health Research Collaborations for Leadership in Applied Health Research and Care (CLAHRCs)
NIHR Collaborations for Leadership in Applied Health Research and Care (CLAHRCs) undertake high-quality applied health research focused on the needs of patients and support the translation of research evidence into practice in the NHS. CLAHRCs are collaborative partnerships between a university and the surrounding NHS organisations, focused on improving patient outcomes through the conduct and application of applied health research. The nine CLAHRCs were established in October 2008.Go to www.nihr.ac.uk/infrastructure/Pages/CLAHRCs.aspx
The National Institute for Health Research (NIHR) Comprehensive Clinical Research Network (CCRN) provides a world-class research infrastructure embedded in the NHS to support participation in high quality clinical research studies across England. The CCRN is made up of 25 Comprehensive Local Research Networks (CLRNs) which cover the whole of England by region. These locally based Research Networks coordinate and facilitate the conduct of clinical research and provide a wide range of support to the local research community.Go to www.crncc.nihr.ac.uk/about_us/ccrn
National Institute for Health Research Dementias & Neurodegenerative Diseases Research Network (DeNDRoN)
The Dementias & Neurodegenerative Diseases Research Network (DeNDRoN) supports the development and delivery of clinical research in the NHS in the dementias, Parkinson’s disease, motor neurone disease, Huntington’s disease and other neurodegenerative diseases.Go to www.dendron.nihr.ac.uk/
The NIHR Diabetes Research Network (DRN) supports and delivers high quality clinical research studies. The primary goal of the NIHR DRN is to achieve benefits for people with diabetes, or at risk of developing diabetes, through excellence in clinical research.Go to www.ukdrn.org
The Efficacy and Mechanism Evaluation (EME) programme was launched in April 2008. It was created as part of the National Institute for Health Research (NIHR) and the Medical Research Council (MRC) coordinated strategy for clinical trials. The EME programme is broadly aimed at supporting ‘science driven’ studies with an expectation of substantial health gain and aims to support excellent clinical science with an ultimate view to improving health or patient care.Go to www.eme.ac.uk
NIHR Evaluation, Trials and Studies Coordinating Centre (NETSCC) is home to a growing number of research programmes and is part of the National Institute for Health Research (NIHR). It is based at the University of Southampton Science Park and was established in April 2008. NETSCC manages the following research programmes: Health Technology Assessement; Public Health Research; Efficacy and Mechanism Evaluation; and Health Services and Delivery Research.Go to www.netscc.ac.uk
The Faculty is at the heart of the NIHR, it includes all of the NIHR funded people working in the NHS, universities and registered charities in England, who generate research ideas in clinical and applied healthcare research, lead or support this research, and evaluate the effectiveness of healthcare interventions and policies. It is a vibrant research community with members exchanging ideas about research and innovation to improve the health and well-being of the nation.Go to www.nihr.ac.uk/faculty/Pages/default.aspx
The HS&DR programme funds research to improve the quality, effectiveness and accessibility of the NHS. It aims to produce rigorous and relevant evidence on the quality, access and organisation of health services, including costs and outcomes. The HS&DR programme is the result of the merger of two former NIHR programmes, the Health Services Research programme (HSR) and the Service Delivery and Organisation programme (SDO). The aims of both programmes are being carried forward into the HS&DR programme.Go to www.netscc.ac.uk/hsdr/
The National Institute for Health Research Health Tecnology Assessment (HTA) programme produces independent research information about the effectiveness, costs and broader impact of healthcare treatments and tests for those who plan, provide or receive care in the NHS. Details of the different ways the public are involved in the HTA programme are outlined on its Public Involvement pages.Go to www.hta.ac.uk
The Horizon Scanning Centre is funded by the National Institute for Health Research and aims to provide key policy makers with advance notice of selected new and emerging health technologies that might require evaluation, consideration of clinical and cost impacts, or modification of clinical guidance up to two to three years prior to launch on the National Health Service (NHS) in England. The scope of the horizon scanning activity includes pharmaceuticals, medical devices and equipment, diagnostic tests and procedures, therapeutic interventions, rehabilitation and therapy, and public health activities.Go to www.nhsc-healthhorizons.org.uk
Invention for Innovation (i4i) funds new solutions and ideas for medical technologies or devices that meet existing or emerging healthcare needs.Go to www.ccf.nihr.ac.uk/i4i/Pages/Home.aspx
The Medicines for Children Research Network’s (MCRN) main objective is to facilitate the development of medicines that are both safe and effective in the treatment of children. It has a major focus on clinical trials but also includes other study designs relevant to the overall objective.Go to www.mcrn.org.uk
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