Research project

Title: Informing Carers: Exploring the relationship between carers, information and information providers.

Project timescale: From 01 June, 2000 to 31 December, 2000
(Added to website on: 07 August, 2001 - Date last updated: 20 April, 2007)

Source of funding:
N/A

Aims: This study explored the relationship between carers, information and information providers. It's purpose was to increase understanding of this relationship and provide suggestions for information providers on improving their information provision for carers.

Research designs used:
Study of views/experiences

Methods used to collect data:
Focus groups
Interviews
Questionnaire survey

Research project description: Research was carried out with carers and information providers in Newcastle upon Tyne. A combined methodology of qualitative and quantitative methods was used, encompassing 3 research methods: postal questionnaire, focus group and one to one interviews. Carers were asked about their positive and negative experiences of finding, accessing and using information. Information providers were asked about their experiences of providing information for and to carers in respect of creating, defining and providing information, helping carers find information and barriers to information provision.

Stages at which the public were involved:
Designing the research instruments
(eg questionnaires, patient information sheets)

Description of public involvement in research stages: Representatives of the 2 research groups (carers and information providers) were asked for feedback and input on questionnaire design/s for the 2 postal surveys.

Training and support provided for either members of the public or researchers involved in the project:

Examples of ways the public have made a difference to the research project: Valuable "from the horses-mouth" feedback re questionnaire design for the postal surveys.

Evaluating the impact of public involvement in the research:

Details of publications or reports resulting from the research: Report produced for MA 'Information Studies' degree for University of Northumbria at Newcastle.

Was/is your project user controlled: Not Known

For further information on the project, please contact:
Ms Alexandra MARTIN
Information Officer
c/o Newcastle Carers Project
NCVS
MEA House
Ellison Place
Newcastle Upon Tyne
Newcastle Upon Tyne
carers@newcastleupontynecvs.org.uk
0191 232 7445

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