Research project

Title: Health Events Linkage for Cancer

Project timescale: From 01 June, 1997 to 01 June, 1999
(Added to website on: 10 May, 2001 - Date last updated: 11 February, 2013)

Source of funding:
NHS R&D

Aims: Prospective health events linkage using multiple data sources for patients newly diagnosed with lung or colorectal cancers.

Research designs used:
Other: Data Linkage

Methods used to collect data:
Validated instruments eg Outcome measures
Observation
Other (please specify): IT Databases

Research project description: Cambridge Residents: 135 Cancer Patients, electronic data linkage from point of diagnosis at multiple sites for up to one year, in response to service problems identified by two voluntary agencies.

Stages at which the public were involved:
Disseminating research
Implementing action
Prioritising topic areas
Planning the research
Analysing the research
Other: Interpreting results

Description of public involvement in research stages: We let the CCHC members prioritise the topic for investigation and appraise potential methodologies. Multiple consumers suggested service changes based on our results.

Training and support provided for either members of the public or researchers involved in the project:

Examples of ways the public have made a difference to the research project: It would not have happened without them.

Evaluating the impact of public involvement in the research:

Details of publications or reports resulting from the research: Wright, J, Sentence, S, McKerral, A & Caan, W. (1999) "Electronic data linkage: Finding Patients 'Lost in the System'". British Journal of Healthcare Computing and Information Management, 16,7, 32-34.

Links to Reports:

Was/is your project user controlled: Not Known

For further information on the project, please contact:
Dr Woody Caan
Lead Investigator
Barking and Havering Health Authority
The Clock House
East Street
Barking
IG11 8EY
woody@public-health.ucl.ac.uk
020 8532 6271

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