The NIHR has highlighted its continuing commitment to ensuring patients, carers and the public have a say in and help to shape health and care research during the COVID-19 pandemic.
The new centre brings together NIHR's activities in patient and public involvement, engagement and participation with its strengths in research dissemination.
The public involvement standards aim to provide people with clear, concise benchmarks for effective public involvement alongside indicators against which improvement can be monitored.
Find out how you can get involved in research - visit People in Research – an online resource where researchers and research organisations advertise opportunities for members of the public to get involved in research
THE INVOLVE RESOURCES AVAILABLE ON THIS WEBSITE ARE UNDERGOING A REVIEW AND MANY ARE DUE TO BE REFRESHED AND RELOCATED IN THE COMING MONTHS. WE’D WELCOME YOUR FEEDBACK ON WHICH RESOURCES MATTER MOST TO YOU by completing this survey or emailing CED@nihr.ac.uk
INVOLVE was established in 1996 and is part of, and funded by, the National Institute for Health Research, to support active public involvement in NHS, public health and social care research. It is one of the few government funded programmes of its kind in the world.
As a national advisory group our role is to bring together expertise, insight and experience in the field of public involvement in research, with the aim of advancing it as an essential part of the process by which research is identified, prioritised, designed, conducted and disseminated.
The Impact of public involvement in NIHR health and social care research is defined as:
“The changes, benefits and learning gained from the insights and experiences of patients, carers and the public when working in partnership with researchers and others involved in NIHR initiatives”
By public involvement we mean research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them as defined by NIHR INVOLVE.
NIHR’s commitment to reporting public involvement is to understand the influence involvement has on NIHR’s work and its key audiences, including the public, researchers, practitioners and funders as well as the wider benefits for health and social care provision.
More about INVOLVE
Read our definition of Diversity and Inclusion and other supporting documents here
Talk to one of our public involvement advisors
Our jargon buster will help you through the terminology
The INVOLVE newsletter is now part of the NIHR PPI Newsletter. Sign up to receive the new NIHR PPI Newsletter and alerts.
Definitions of commonly used terms
See what we're working on at the moment
Our resource centre contains our publications and libraries of reference as well as our databases for researchers
Find out more about public involvement in research networks
This is my story. What will yours be?’: A whiteboard animation By Tom Grew
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