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INVOLVE policy on payments and expenses for members of the public
Published April 2015. Our internal policy and procedures.
Stronger together: Collective endeavours of a cleft and research organisation to promote the role of young people affected by a cleft in research
Abstract: The Cleft Lip and Palate Association (CLAPA) is a national charity that supports families and individuals affected by a cleft. It has been working closely with the Cleft Collective over the past two years to promote the active involvement of its members in research. The Cleft Collective is the world’s largest cleft lip and …
Developing mobile applications for and with young people with long-term conditions learning to share their health-care with professionals: A young person and family-led approach
Abstract: Although young people are frequent users of mobile devices in day-to-day life, there is little reliable research that actually involves young people with long-term conditions as partners in the development and testing of mobile technology applications to support their health needs. However, the transition from child to adult health services means that young people …
Developing patient and public involvement (PPI) at the Bristol Nutrition Biomedical Research Unit: The challenges of tailoring PPI
Abstract: The National Institute for Health Research (NIHR) Biomedical Research Unit in Nutrition, Diet and Lifestyle at the University of Bristol and the University Hospitals Bristol NHS Foundation Trust was launched in April 2012 and specialises in a diverse range of research areas including: nutrition, physical activity and lifestyle in men with prostate cancer; optimising …