The authors of this report are Helen Hayes, Sarah Buckland and Maryrose Tarpey of the INVOLVE Coordinating Centre.

The publication was developed with the support, expertise and guidance of an advisory group:

Ann Louise Caress, Professor of Nursing, University of Manchester

Alison Ford, Public and Patient Involvement Manager, National Institute for Health Research (NIHR) Evaluation, Trials and Studies Coordinating Centre (NETSCC)

Lesley Roberts, Carer

Kati Turner, Service User Researcher, St George’s, University of London

Derek Ward, Research Fellow, University of Portsmouth, Research Design Service South Central Advisor

Tracey Williamson, Research Fellow, Public Engagement and User Involvement in Research, University of Salford

INVOLVE is funded by and part of the National Institute for Health Research (NIHR).