Briefing notes: References

References

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Brett, J., Staniszewska, S., Mockford, C., Seers, K., Herron-Marx, S. and Bayliss, H. (2010) The PIRICOM Study: A systematic review of the conceptualisation, measurement, impact and outcomes of patients and public involvement in health and social care research. London: UKCRC.

Broese, J., Zweekhorst, M., van Rensen, A. and de Hann, M. (2009) Involving burn survivors in agenda setting on burn research: An added value? Burns 36, pages 217-231.

Buckland, S. et al (2007) Public Information Pack (PIP). How to get actively involved in NHS, public health and social care research. INVOLVE, Eastleigh.

Denny, E. (2011) Endometriosis and cultural diversity: improving services for minority ethnic women. INVOLVE Research project database.

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Dickson, I., McAlear, P., Wallace, A. and Forbat, L. (2011) Involving men affected by prostate cancer.  INVOLVE Autumn 2011 Newsletter, page 6.

Edwards, V., Wyatt, K., Logan, S. and Britten, N. (2011) Consulting parents about the design of a randomised controlled trial of osteopathy for children with cerebral palsy. Health Expectations volume 14 issue 4, pages 429-438

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Fleming, J. (2010) An evaluation of a teenage pregnancy prevention strategy. In: Blackburn, H., Hanley, B. and Staley, K. Turning the pyramid upside down: examples of public involvement in social care research. Eastleigh: INVOLVE, pages 24-28

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INVOLVE (2012) Strategies for diversity and inclusion in public involvement: Supplement to the briefing notes for researchers. INVOLVE, Eastleigh.

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INVOLVE (2011) What you need to know about payment: an introductory guide for members of the public who are considering active involvement in NHS, public health or social care research. INVOLVE, Eastleigh.

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Mental Health Research Network and INVOLVE (2013) Budgeting for involvement: Practical advice on budgeting for actively involving the public in research studies. Mental Health Research Network, London and INVOLVE, Eastleigh.

National Institute for Health Research (NIHR) Annual Report (2009/10) Embedding health research. Published 30 July 2010 [online].

National Research Ethics Service and INVOLVE (2009) Patient and public involvement in research and research ethics committee review (Joint Statement). INVOLVE, Eastleigh

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Staley, K. (2009) Exploring Impact: public involvement in NHS, public health and social care research. INVOLVE, Eastleigh.

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TwoCan Associates for the UK Clinical Research Collaboration and the National Cancer Research Institute (2010) Patient and public involvement (PPI) in research groups – Guidance for Chairs

Wright, D., Corner, J., Hopkinson, J. and Foster, C. (2007) The case for user involvement in research: the research priorities of cancer patients. Breast Cancer Research, vol. 9 (Suppl 2):S3.

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