By Jaffa Panel members*
The ‘Jaffa’ Panel is a patient and public involvement (PPI) lay research panel based at Brighton and Sussex University Hospitals Trust (BSUHT). We meet weekly to give researchers the opportunity for an early lay review of their research ideas. The group helps to ensure that the research questions and topics are relevant to patients. It also reviews written materials, including plain English research summaries and patient information sheets. The panel currently has 10 active members, with ages ranging from 16 to 83. There is a very welcoming and inclusive dynamic, where discussion flows freely between the generations.
The Jaffa Panel presented at the INVOLVE Conference in November 2014 (see http://tinyurl.com/q8shshq). With two presenters aged 16 and another two aged under 25, many questions were asked about how to get busy young people involved with research. Aidan, aged 16, succinctly replied: “‘If you build it they will come!”
However, if you’re going to build it, you have to build it right. The Jaffa Panel has evolved some good working practices. Here are some reflections from younger members about their experiences:
One younger Jaffa Panel member challenged us to write a ‘Slam Poem’ for the INVOLVE conference (for information on Slam Poems see:http://en.wikipedia.org/wiki/Poetry_slam). This neatly encapsulates how we like to operate.
We have made a video in which five researchers highlight the changes they made to their research having received Jaffa Panel advice: www.youtube.com/watch?v=zbLY2fzXtws
Aidan, aged 16, said: “I both enjoy and feel grateful for these opportunities as they are not generally given to people as young as I am.”
Other reflections from the younger people about things they have appreciated include:
*Written by Jaffa Panel members: Shana Pezaro, Victoria Hamer, Archie Bell, Aidan Bishop, Garry Bisshop, Teddy Carlin, Elliott Cotterell and Duncan Barron
Contact: The Jaffa Panel