Description

Formed in 1980, Children’s Liver Disease Foundation is the only UK charity dedicated to fighting all childhood liver diseases.

We provide:

  • A comprehensive information hub on childhood liver disease for healthcare professionals and for families
  • A tailored support service for children, young people and young adults with liver disease and their families
  • Research into all aspects of childhood liver diseases
  • A collective voice for everyone affected by childhood liver disease

Public involvement in research

Supporting and promoting research into childhood liver disease is a vital part of CLDF’s work. We put patients and families at the heart of everything we do.

The hub supports involvement of young people and families affected by childhood liver disease in research design and feasibility. It will help researchers to engage with patients to improve the quality of research and increase the likelihood of paediatric liver research projects being funded by CLDF as well as external grant making bodies.

Role of the Research Hub:

  • Work with patients, families and carers to set research priorities
  • Support the researcher community to find volunteers willing to be involved in shaping research as well as taking part in studies
  • Communicate the impact of childhood liver disease research to those impacted by the condition
  • Provide patients and families with frequent updates on the latest developments in paediatric liver research, fostering greater understanding and engagement

https://childliverdisease.org/research/research-hub/

Coverage

UK wide

National Institute for Health Research Networks

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