What information do I need to provide to be added to the resource?

If you would like details of your organisation added to the database you will need to:

  • demonstrate how you support active public involvement in health and social care research (see description below)
  • provide details of a named contact who will be able to answer enquiries about public involvement in research in your organisation.

We will not include details of organisations, groups or individuals that wish to advertise for commercial purposes.

Keeping the information up to date

The named contact will be emailed every 6 months and asked to update the information on the database.  If we are unable to verify that the information is current we will delete the details from the resource.

If you would like to advertise specific opportunities for members of the public to get actively involved in research please visit People in Research

What is public involvement in research?

INVOLVE defines public involvement in research as research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. This includes, for example, working with research funders to prioritise research, offering advice as members of a project steering group, commenting on and developing research materials and undertaking interviews with research participants.

When using the term ‘public’ we include patients, potential patients, carers and people who use health and social care services as well as people from organisations that represent people who use services. Whilst all of us are actual, former or indeed potential users of health and social care services, there is an important distinction to be made between the perspectives of the public and the perspectives of people who have a professional role in health and social care services.

Further information