A group of organisations in the South East have been successful in securing funding from the Sussex based charity Rockinghorse to establish a Children and Young Persons’ Patient & Public Involvement (PPI) Group (C&YPG). Working in partnership were Research Design Service South East, INVOLVE, Clinical Research Network Kent Surrey Sussex, Sussex Community Foundation NHS Trust, Brighton & Sussex University Hospital Trust, Brighton & Sussex Medical School and the University of Brighton.

The (C&YPG) seeks to ensure that health and social care research and services in the South East are informed by the needs and views of children and young people (C&YP). This will be achieved by promoting and encouraging the effective involvement, participation and engagement of C&YP in health and social care research in the South East region of Kent, Surrey and Sussex.

For further information please contact:

Duncan Barron, Senior Research Fellow

Patient & Public Involvement (PPI) Lead, NIHR Research Design Service South East & Brighton & Sussex University Hospital Trust (BSUH), University of Brighton, Centre for Health Research, Mayfield House (Room 262), Falmer BN1 9PH

t: 01273-644109 m:07969 687 934

Regional Networking (Led by Gary Hickey, Paula WrayMartin Lodemore and Kate Sonpal, Senior Public Involvement Managers)

Many existing local networks and partnerships provide a range of benefits, including local support, sharing of good practice and encouraging collaborations. These networks vary in their aims, their methods and their membership, often governed by regional structures. Working with our RDS partners we aim to develop a unique project plan for each RDS region, to support the development of networks that address local issues and are sustainable. Areas covered by each Senior Public Involvement Manager are shown on the map.

The INVOLVE-RDS Partnership will explore and support existing networks and forums in each of the 10 RDS regions, and create new networks where none exist. Links will be created to and from the regional networks to the national agenda, through the INVOLVE-RDS Partnership. Sustainable funding models for local networks will be explored, as no central funding will be provided by the INVOLVE-RDS Partnership. Geographic and demographic inclusion will be assessed to improve each network’s reach. New partners may be approached, where this is considered to be of benefit to the network. Benefits for all partners will be explored to ensure sustainable models are developed for each network.  It is anticipated that each region will have a unique make-up and its own set of challenges, generated by local issues and needs. The INVOLVE-RDS Partnership will therefore have a flexible approach to each area, ensuring that local researchers, partner organisations and communities benefits from working collaboratively.

PILAR (Public Involvement and Lay Accountability in Research and innovation), a partnership of professional and public members involved in Public Involvement and Engagement (PPIE) in health research and its use in the NHS within the West Midlands have developed a website to highlight their work. You can find out more about PILAR, and how to contact them here https://sites.google.com/nihr.ac.uk/pilar/home.