The Guidance

This guidance provides some practical tips on the Who, Why When, What and How researchers could improve their Feedback to PPI contributors.

https://www.clahrc-eoe.nihr.ac.uk/wp-content/uploads/2016/05/Guidance-for-Researchers-PPI-Feedback_2018.pdf

The Project

Patients and Public involvement (PPI) in research is defined as an active partnership between the public and researchers in the research process, rather than the use of people as ‘participants’ of research.  Service users / PPI representatives provide comments to researchers (on research proposals or documents) and researchers are encouraged to provide feedback to PPI representatives so that the PPI representatives know if their comments are worthwhile or useful.  Evidence indicates that this feedback is not routine and is very variable.

https://www.clahrc-eoe.nihr.ac.uk/2016/05/impact-patient-public-involvement-ppi-completing-feedback-cycle/