Our links page includes details of research websites and organisations that might be helpful for researchers and members of the public who have an interest in active public involvement in research.
The links can be searched by clicking on one of the letters below or browsing all links.
If you would like us to add a link to your website, you’ll find a form and information on the type of links we publish on our Add your link page.
INVOLVE is not responsible for the content or reliability of the linked websites and does not necessarily endorse the views expressed within them.
The IDEAL Collaboration is an international group working on ways to improve the reliability, relevance and fundability of research in surgery, medical devices and other complex or innovative interventions in healthcare. The Collaboration is directed by an international Steering Group of surgeons and researchers in surgical and other innovative complex interventions, research methodologists, statisticians, journal editors and experts in the translation of research into clinical practice. We invite interested members of the public and patient advocacy groups to get involved with helping us to improve surgical research – register your interest.
IDEA is an online learning centre to improve the care and quality of life of people with dementia. It is a one-stop website where you will find information and resources including online courses and a range of audio-visual materials about dementia, its causes, treatment and the care of people affected. There are also forums where carers and professionals can share good practice in the area of dementia care. The University of Nottingham Patient and Public Involvement group for people with dementia and their carers provided feedback on IDEA during the piloting phase. This is also a useful resource for researchers who are actively involved with people with dementia and their carers.
Independent Cancer Patients’ Voice (ICPV) is a patient advocate group led by patients for patients. We believe that clinical research is improved by patients being partners with clinicians and healthcare professionals, rather than passive recipients of healthcare. By bringing the views and experience of cancer patients, their family and carers, to the cancer research community, we aim to improve outcomes and develop new treatments for every cancer patient.
This INVOLVE online resource is a directory of networks, groups and organisations that support active public involvement in NHS, public health and social care research. The resource allows individuals or networks, groups or organisations to be aware of and make contact with others who are carrying out similar work.
Involving People supports public involvement in health and social care research across Wales.
We provide members of the public who live in Wales with information, support, training and opportunities for active involvement in research projects. Researchers based in Wales can obtain advice on active involvement and be linked to members of the public who are passionate about research.
This is the website for the Consumer and Community Participation Program, a joint venture between the University of Western Australia’s School of Population Health and the Telethon Kids Institute. Its aim is to support consumers, community members and researchers to work together to increase and enhance consumer and community participation in research.