Our links page includes details of research websites and organisations that might be helpful for researchers and members of the public who have an interest in active public involvement in research.
The links can be searched by clicking on one of the letters below or browsing all links.
If you would like us to add a link to your website, you’ll find a form and information on the type of links we publish on our Add your link page.
INVOLVE is not responsible for the content or reliability of the linked websites and does not necessarily endorse the views expressed within them.
Alzheimer’s Society Research Network is a team of carers, former carers and people with dementia who play an integral role in the research programme.
The mission of Athena is to scientifically study and design interfaces between science and society. The Institute works on a great diversity of projects concerning patient and public involvement.
The Balance Enhancement and Ulcer Prevention (BEUP) website aims to increase public and patient involvement within the research programme by providing a public friendly information centre and point of contact. The group’s collaborative long-term aim is to translate the results from its published research into everyday clinical practice for the benefit of patients with diabetes (and peripheral neuropathy).
Included within the site is a section including details of the patient and public research steering group and a section about how patients and the public might get involved in the research programme.
Bradford Alliance on Community Care (BACC) was set up in 1989 by community and voluntary groups and organisations to strengthen the voices of community care service users and carers in the planning of health and social care services across the Bradford Metropolitan District.
The site contains information on the rare disease work the unit facilitates. Importantly it has a section on Public Patient Engagement to help researchers
Cancer Voices is a UK-wide network of people affected by cancer who are helping to shape the future of cancer care supported by Macmillan Cancer Support.
The Center for Evidence-based Policy at Oregon Health & Science University is a national leader in evidence-based decision making and policy design. A core element of patient-centered outcomes research is involving patients, caregivers, and members of the public as partners in research.
Centre for Mental Health aims to help to create a society in which people with mental health problems enjoy equal chances in life to those without. It carries out research, policy work and analysis to improve practice and influence policy in mental health as well as public services.
The Cochrane Consumer Network (CCNet) exists to support health care users, their parents and carers learn about evidence-based healthcare. It encourages consumers throughout the world to give their perspectives and help set priorities for health care. CCNet promotes user input into and acceptance of evidence-based healthcare to guide well-informed decisions about health care.
The Cochrane Library is a collection of six databases that contain different types of high-quality, independent evidence to inform healthcare decision-making, and a seventh database that provides information about groups in The Cochrane Collaboration. The Cochrane Library includes: the Cochrane Database of Systematic Reviews, the Database of Abstracts of Reviews of Effects and the Cochrane Central Register of Controlled Trials.
Contact, Help, Advice and Information Network (CHAIN) is an online mutual support network for people working in health and social care. It is based around specific areas of interest, and gives people a simple and informal way of contacting each other to exchange ideas and share knowledge.
This site contains material produced by and for the Department of Health. It includes press releases and details of Department of Health publications, as well as information about the Department of Health and NHS Executive.
The EQUATOR Network is an international initiative that seeks to enhance reliability and value of medical research literature by promoting transparent and accurate reporting of research studies.
Europe PubMed Central is a free information resource for biomedical and health researchers. It includes over 28 million searchable abstracts and 2.6 million full text research articles.
ECRAN aims to improve EU citizens’ knowledge about medical research and support their participation in clinical trials. The site has videos about clinical trials, games, and a searchable inventory of resources.
This European consortium project, funded by the Innovative Medicines Initiative, will provide scientifically reliable, objective, comprehensive information to patients on medicines research and development. It will increase the capacities and capabilities of well-informed patients and patient organisations to be effective advocates and advisors in medicines research.
Launched in October 2006, the Experimental Cancer Medicine Centre (ECMC) Network is jointly supported by Cancer Research UK and the Departments of Health for England, Scotland, Wales and Northern Ireland, to fund a network of Experimental Cancer Medicine Centres across the UK. The goal of the ECMC Network initiative is to drive the development of new therapies to bring benefits to patients faster.
Folk.us works to support and develop patient, service user and carer involvement in health and social care research activities to ensure that those who use services and those who care for those who use services inform and guide research at all stages.
The Health Research Authority (HRA) was established in December 2011 to protect and promote the interests of patients and the public in health research, and to streamline the regulation of research. It is committed to involving patients and the public in its work.
Funded by the Department of Health and managed by the National Healthcare-Associated Infection Research Network (HCAI RN), Service Users Research Forum (SURF) provides a forum for members of the public to find out more about HCAI research and supports their involvement by ensuring they are able to make a valid and meaningful contribution to the research process. SURF also provides an opportunity for researchers and healthcare professionals to work in collaboration with service users, their carers and members of the public to improve current research, widely disseminate findings and identify the most important areas for future research.
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15 November, 2019