Public Information Pack (PIP) Booklet 1: A quick guide

The Public Information pack (PIP) is made up of four booklets and is for members of the public who are interested in getting involved in NHS, public health and social care research. The booklets have been produced by INVOLVE with support and advice from members of the public to help us ensure we cover the kind of information people need when first getting involved in research.

The other three booklets in the series are:
PIP 2: Getting started
PIP 3: Finding out more
PIP 4: Jargon buster

No. of pages: 5




IN Bulletin 5 – Clinical Research Ambassador Group

Welcome to the fifth issue of our IN: Bulletin.

This bulletin looks at the Clinical Research Ambassador Group (CRAG) based at Birmingham Heartlands Hospital.




Guidance on co-producing a research project

Co-producing a research project is an approach in which researchers, practitioners and the public work together, sharing power and responsibility from the start to the end of the project, including the generation of knowledge.

This guidance is a first step in moving toward clarity about what we mean by co-producing a research project. It explains the key principles and features of co-producing a research project and suggests ways to realise the principles and key features. Finally, the guidance outlines some of the key challenges that will need addressing, in further work, to aid those intending to take the co-producing research route.

Pages: 20




What you need to know about payment

An introductory guide for members of the public who are considering active involvement in NHS, public health or social care research.

20 pages

Please note that benefits guidance and tax legislation been subject to considerable change/reinterpretation since 2019. Any INVOLVE documents referring to the payment of involvement fees may now be out of date and are pending a review during 2020. INVOLVE’s guidance should not be substituted for professional advice, and INVOLVE accepts no liability for decisions or actions taken as a result of its guidance. You are always recommended to take your own tax, finance or legal advice.




Wendy Baird




Updates on welfare benefits regulations (2018)

Please note that benefits guidance and tax legislation been subject to considerable change/reinterpretation since 2019. Any INVOLVE documents referring to the payment of involvement fees may now be out of date and are pending a review during 2020. INVOLVE’s guidance should not be substituted for professional advice, and INVOLVE accepts no liability for decisions or actions taken as a result of its guidance. You are always recommended to take your own tax, finance or legal advice.

Welfare benefits regulations can be complicated. These updates offer guidance on some recent changes to the regulations that may affect people who are offered payment for public involvement in research while receiving welfare benefits.

Pages: 5




Public Information Pack (PIP) Booklet 3: Finding out more

PIP 1: So what is it all about?
PIP 2: Getting started
PIP 4: Jargon buster

No. of pages: 20

The Public Information pack (PIP) is made up of four booklets and is for members of the public who are interested in getting involved in NHS, public health and social care research. The booklets have been produced by INVOLVE with support and advice from members of the public to help us ensure we cover the kind of information people need, when first getting involved in research.




INVOLVE policy on payments and expenses for members of the public

This document lays out our internal policy and procedures for payments and expenses for members of the public involved with our work, including INVOLVE Group members. The policy explains when and how payments will be made and expenses covered. These procedures are specific to INVOLVE and our organisation. Others may find the information in the policy useful in order to develop a policy relevant to their organisation.

No. of pages: 19