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Sheffield Motor Neurone Disease Research Advisory Group
Abstract: The presentation will be in the form of a poster and it aims to educate people about the group that is now supporting Motor Neurone Disorders (MND) researchers through Yorkshire and Humber to: Enable patient and carer perspectives to be included in research proposals Identify and prioritise research topics important to patients and their …
Public and patient involvement (PPI) as a challenge and a tool in European Joint Programming Initiative on Neurodegenerative Disease Research (JPND)
Abstract: Neurodegenerative diseases such as Alzheimerโs and Parkinsonโs are a truly global challenge. Most of these diseases remain incurable and are strongly linked with ageing populations. Dementias alone affect more than 7 million people in Europe and their care is estimated to cost โฌ130 billion a year. The EU Joint Programme – Neurodegenerative Disease Research …
Training and support for PPI in research: What have your experiences been?
Abstract: In this interactive poster display, we present some of the current issues around training and support for public involvement in research and invite you to submit your experiences and views. We are aware that this is an area where many centres are looking for support and guidance to develop appropriate approaches. This is one …
Health Education Reaching Out (HERO) Projects exemplify PPI as a catalyst to improved outcomes not an inhibitor
Abstract: HERO works with students, teachers and health professionals to investigate the best ways of getting health messages across to young people, communities, patients and their families. Active patient and public participation is a significant component of all HERO projects. This presentation will illustrate the different opportunities for stakeholder involvement showing how they can affect …
Patient and Public Involvement (PPI) Groups: Is there a right or wrong model?
Abstract: Within NIHR CLAHRC for LNR we have two PPI groups with distinct memberships and ways of working. I will compare and contrast these groups and provide an overview of who is involved as well as their function, structure, method of operation, achievements and future plans. Both groups have the shared goal of ensuring that …
STOP Chronic Back Pain! Self management and timely intervention: An opportunity for the prevention of chronic back pain
Abstract: Our innovation study involved service users in planning, implementing and evaluating a pain management programme for people with back pain. Our novel approach offered early access to pain management aiming to prevent pain from becoming chronic. Components of the programme were psychology, physiotherapy, occupational therapy, relaxation and medical input. Additional tiers of peer support …
Involving service users as co-learners in research about quality improvement, interprofessional education and back pain: The service user perspective
Abstract: Personal experience of service users who are involved in research is rarely reported in study findings. We describe an exploration of service user involvement that builds on a larger study evaluating an interprofessional educational initiative. Specifically primary health care teams worked alongside service users to learn about quality improvement and implementation. Semi structured interviews …
Using an online survey to paint a picture of service user involvement in the field of Healthcare Associated Infection Research
Abstract: This poster will present the results of an online questionnaire survey of researchers working in the field of Healthcare Associated Infections. The survey asks participants to provide data on: the level and types of patient and public involvement (PPI) included in current and recent research; researchersโ experiences of PPI; perspectives on the benefits and …