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Impact of public involvement on the ethical aspects of research
May 2016. A joint briefing from the Health Research Authority and INVOLVE on how public involvement can help in the ethical design and conduct of research.
Developing mobile applications for and with young people with long-term conditions learning to share their health-care with professionals: A young person and family-led approach
Abstract: Although young people are frequent users of mobile devices in day-to-day life, there is little reliable research that actually involves young people with long-term conditions as partners in the development and testing of mobile technology applications to support their health needs. However, the transition from child to adult health services means that young people …
Sheffield Motor Neurone Disease Research Advisory Group
Abstract: The presentation will be in the form of a poster and it aims to educate people about the group that is now supporting Motor Neurone Disorders (MND) researchers through Yorkshire and Humber to: Enable patient and carer perspectives to be included in research proposals Identify and prioritise research topics important to patients and their …