Read about the lessons from the INVOLVE/Research Design Service Reaching Out programme
Read the document here.
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INVOLVE have just published some further guidance to help determine who might be involved in your research
See the guidance here.
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Mesothelioma
Our goal is to spread the word about mesothelioma, a rare cancer that affects protective membranes surrounding lungs, heart and abdominal cavity that’s mainly caused by asbestos exposure. We provide free informational books, packets and a Patient Advocacy program that works 1-on-1 with individuals to help them find local doctors, treatment centers and support groups.
Our organization is a resource to help anyone suffering from mesothelioma find free care and support.
Please take a look at some of the great information we have.
NIHR PPI Newsletter March 2020
- Tina Coldham shares her thoughts on INVOLVE’s evolution
- UK Standards for Public Involvement – next steps for putting standards into practice
- The Reaching Out project in Yorkshire share outcomes of work with gypsy and traveller communities
- STADIA project public involvement contributor and researcher share their experiences
- Zoe Gray, Director of INVOLVE reflects on journey of the standards development and next steps
- NIHR coordinating centres are looking for members of the public to join an NIHR committee
- Co-production: Teasing out the Tensions. Event held in London in February 2020
- NIHR looking for carers, patients and members of the public to review research proposals on social care
- UKCRF is focussing on UK Standards for Public Involvement in the Network’s 2020/21 work plan
- NIHR announces new standards for public involvement in research
- Testing the UK standards for public involvement
- Jennifer Bostock reflects on her experience as a public contributor
- What is Health Research? – free online course
- New case study: translating intentions into action. NIHR collaboration with Pfizer Ltd
- Stroke priority setting partnership – have your say
- NIHR Be Part of Research – description and website link
- People in Research – description and website link
- Co-production in Action resources – website links