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Making a difference in the mental health services
This paper provides an account of an action research project undertaken by Suresearch, a Midland based user-led network of people using mental health services and their allies involved in research and education. This project, commissioned by the Birmingham and Solihull Mental Health Trust, was designed to promote user involvement in clinical governance in the Trust. …
Implementing the Statement on Consumer and Community Participation in Health and Medical Research in Australia
This report focuses on disseminating and implementing research, based on an Australian pilot. In 2004, the Consumers’ Health Forum of Australia (CHF) and the National Health and Medical Research Council (NHvIRC) are collaborating to implement their joint Statement on Consumer and Community Participation in Health and Medical Research. CHF’s membership comprises over 100 Australian health …
Collaborative research with older gay men and lesbians
This paper examines a recently funded project into the needs of older gay men and lesbians in the Bournemouth, Poole and Dorset area, funded via a Community Fund grant. This is a joint project between Bournemouth University and Help and Care, a local voluntary sector agency working with older people and their carers. The paper …
Discovering the research priorities of people with type 2 diabetes
This paper describes a piece of research in which diabetes service users collaborated at every stage. A reference group of health professionals and service user representatives was set up to define our research question. We wanted to find out what the important areas of diabetic people’s lives were. We aimed to define and prioritise some …
Service user involvement in forensic mental health research
Although substantial work has been undertaken in developing methods of involving service users in research, the forensic mental health context does present a number of unique problems associated with access, the need to maintain security, confidentiality and the protection of individuals. The UK Department of Health’s Forensic Mental Health Research and Development Programme commissions research …
Public perspectives on assessing what works in health care
We have gathered public perceptions on assessing ‘what works?’ in health by asking people what is most important to assess and how should this be done. We have done this with people working with the Cochrane Collaboration and the NHS Health Technology Assessment Programme. Here we shall present perceptions from the public on testing ‘what …
Involving users in NHS research
This paper will provide a model for involving users in the NHS research process as a mechanism of improving quality of research. The chosen conference theme will be addressed through discussion of the development and implementation of the model. The issues are: Identifying and involving users: The Cardiothoracic Centre ? Liverpool NHS Trust (CTC) has …
Creating a dialogue: Helping researchers put user involvement into practice
The North West Users Research Advisory Group (NWURAG) has been meeting regularly since 2000 with the aim of promoting the NHS policy of User involvement in R&D in the North West region. The Group comprises 50% lay members and 50% professionals (a mix of academics and health service personnel). The Group is supported by Health …