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Developing partnerships for research: Training workshops for service users, carers workers and researchers
We will report on the development and evaluation of a series of five ESRC funded workshops designed to explore and develop collaborative working in mental health research. Through the workshops we aimed to provide participants with an introduction to the research cycle, and to explore meaningful ways of service users, carers, and researchers working in …
Trials, tribulations and joys of co-researching with young service users
The paper is based on part of the experience of undertaking a national evaluation of the NSPCC’s Young People’s Centres (YPC’s) using young people as co-researchers. The NSPCC were keen to put young people, as consumers of services, at the heart of the YPC initiative and this research by young people was to evaluate how …
Fairytales and failures – lessons from the ‘Collaborative Research Project’: Service users, nurses and researchers working together
The ‘Collaborative Project’ carried out a UK survey of researchers, to explore the topic and nature of collaborative research. 37 projects were categorised and invited to participate in follow-up telephone interviews. This qualitative data revealed the nature and extent of collaboration as experienced by those ‘professional’ and ‘service user’ researchers involved. This presentation will draw …
Older people: Doing research for ourselves
The paper will provide an overview of an innovative project, ‘The Older People’s Project Support’ study (OPPS) which aims to develop a model of older people’s involvement in their own research. The emphasis of the paper will be on Older People’s Forums’ involvement in their own research projects. The paper will be structured as follows: …
Communicating research findings to those who may use the research
The aim of this workshop is to help participants work out how to get their messages about research across to many different service users, policy makers and providers. The workshop will consist of interactive group work, and practical exercises about information and accessibility. We will address the theme of dissemination, by considering the following questions: …
“No – You don’t know how we feel” – Getting the message across: young people, facing the life-threatening illness of a parent, make their voices heard
The Video Project was a collaborative inquiry with 9 young people, facing the serious illness of a parent, to discover their views and needs, through the making of a video. The film was aimed not at professionals but at families in a similar situation and its aim was to improve the way children are supported …
Talking it through: involving people with communication difficulties in research
This paper describes an ethnographic research project that documented the social exclusion of people with severe aphasia (a communication disability that commonly follows stroke). Our project was intended to be as inclusive as possible of the people it was about, and was monitored by an advisory group comprising people with aphasia, some with very marked …
Evaluation of consumer involvement in the London Primary Care Studies Programme
The paper will describe the ongoing evaluation of 11 projects funded in London as part of the Primary Care Studies Programme. Although diverse in their subject matter, each project had some degree of consumer involvement, and was supported by a continuing training programme in consumer involvement. Our task is to evaluate the effect of the …