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Partnership research: researchers with and without learning difficulties working together
In 2005 a group of 20 researchers with and without learning difficulties came together for three residential workshops to learn — from each other — about how to plan research together. At the workshops we worked together designing, planning and piloting research projects ‘in partnership’. We held a small conference in June to tell people …
People with learning disabilities’ and carers’ research questions for investigating health risks
Most people with learning disabilities, family carers, and care-workers do not get the chance to decide about research projects. Anita Young asked 20 people with learning disabilities and 20 carers / care-workers about the big questions for doing a research project. The project was about making things better for health. Anita will talk about how …
The Research Assessment Exercise (RAE) and public involvement in research: can the tensions be reconciled?
The Research Assessment Exercise (RAE) determines funding allocation for university research – a major location of research activity. There are concerns that the RAE’s orientation is not consistent with increasing interest in public, patient and service user involvement in research/evaluation. Different RAE panels and subpanels approach this issue in different ways. Clearly it is important …
The Comensus Project
The Comensus Project has been established in the Faculty of Health at the University of Central Lancashire. The aims are to provide for systematic participation of health and social care service users and carers in all aspects of the Faculty’s work: practitioner education and training; research; and strategic planning. A key element of the project …
Research Jargon Buster
Research (and the NHS) can be full of jargon and very confusing when you don’t understand what the words mean. One group of people who found exactly that decided to write a jargon buster for other people trying to find out about and do research. The poster will describe the background to the Direct Impact …
Listening to the voices of service users and carers and making them count
Last year Bec and Kristina worked with Macmillan Cancer Support. They tried to find out how different organisations listened to the views of service users and carers, and then how these views were made to count. They also looked at how people with cancer had listened to the views of other people with cancer. The …
Taking part in a steering group for a non-pharmacological intervention clinical trial Taking part in a steering group for a non-pharmacological intervention clinical trial
The Alzheimer’s Society funds research through the Quality Research in Dementia programme (QRD) which, through the QRD Consumer Network, involves consumers in all stages of the selection and administration of the funded research. A proposal to address management of challenging behaviour in care homes for people with dementia was selected by QRD in 2002 and …