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Working collaboratively while recognising differences: Regional collaboration in PPI (Patient and Public Involvement) in the East of England
Abstract: Many different organisations work within the sphere of patient and public involvement (PPI) in the East of England. Many of the organisations have distinct roles within PPI and yet some of these roles, especially within the sphere of training and support, tend to overlap. The different organisations also tend to have access to specialised …
Involvement in Research for Patient Benefit: Development of PPI throughout the programmeβs history
Abstract: The Research for Patient Benefit (RfPB) programme is one of the National Institute for Health Research funding schemes, which funds regionally derived research projects in health services and social care. Launched in 2006, the programme has been in operation for over five years now. Patient and public involvement (PPI) has been embedded in the …
A patient advisory board: Improving breast cancer clinical trials
Abstract: The Dutch Cancer Society (KWF) and the Breast Cancer Study Group (BOOG) believe that design and execution of clinical trials can be improved when patients become actively involved. A qualitative study is conducted β involving breast cancer patients, researchers and stakeholder organisations – to explore possibilities for active patient involvement in breast cancer clinical …
Collaborative research and development of PsyConnect: An online support tool for mental health recovery
Abstract: PsyConnect is a collaborative research project that is adapting, implementing and evaluating a diagnosis-independent online tool in mental health. PsyConnect aims to support service users in articulating their values, objectives and concerns in ways that also help providers in adapting their expertise in relevant and individualised ways. The tool can be used through all …
Information and communication technologies among mental health service consumers: A consumer-conducted survey of use, needs and potentials
Abstract: Information and communication technologies (ICT) are increasingly used to support patients in managing their health, also in collaboration with health care providers. The study reported here is part of a larger, recently initiated project to design and evaluate an ICT-based tool to support mental health service consumers in recovery processes. The project is conducted …
Exploring impact: Patient and public involvement in the NIHR Research Design Service for the South East
Abstract: Exploring the impact of PPI in research is currently a hot topic of debate; rapid growth of PPI in research in recent years has provided raw information with which to investigate the role of impact, and build an evidence base about how PPI can value to the research process. The NIHR Research Design Service …
Authentic public involvement in mental health research: The North East Mental Health Research Network’s strategy for capacity building
Abstract: The poster will illustrate the role the Mental Health Research Network (MHRN) is playing in the North East of England; with emphasis on their unique position to network with interested parties, for example service users, carers, academics, clinicians, NHS Trust Research and Development departments and universities. The poster will present information gathered from a …
The development of PPI in musculoskeletal disease: The LMBRU experience
Abstract: The Leeds Musculoskeletal Biomedical Research Unit (LMBRU) opened at Chapel Allerton Hospital in 2009, the first research unit within the Leeds Trust. Funded from the NIHR, the LMBRU translates musculoskeletal research into improving patient care. The LMBRU PPI group started in early 2010 and covers a wide area of involvement: one of most successful …