Summer 2003

In this issue:

  • Research Governance in health: leaflet
  • Support Unit News
  • Interesting articles and publications
  • Research – disabled people with learning difficulties: the power struggle
  • Calling for more public involvement in pesticide research
  • New CERES website
  • Taken seriously?
  • Notice Board


Report of commissioning workshop

Authors: Jane Royle, Sarah Buckland and Helen Hayes

This report is a summary of the presentations and discussions held on 2 July 2003, when invited members of the public, commissioners and researchers with experience of public involvement in the commissioning process attended a one-day workshop.

No. of pages: 22



Spring 2003

In this issue:

  • Announcing a new name…
  • Support Unit News
  • TRUE Project update
  • Recent reports and journal articles
  • The voices of older people
  • Older women in Sheffield
  • User involvement in cancer research
  • Parents as researchers
  • A development tool for user representation
  • Shaping Our Lives
  • Trent Institute for Health Services Research
  • Notice Board


Winter 2002-03

In this issue:

  • Consumer involvement database
  • Support Unit News and TRUE Project update
  • Planning and designing an evaluation of an electroconvulsive therapy (ECT) service
  • Peer Reviewing
  • Interesting recent reports and journal articles
  • Helping older people to share the research journey
  • SureSearch: Developing user expertise in research and education
  • Notice Board


Participants’ Assessment of Clinical Trials (PACT) scoping study: full report

Authors: Marion Campbell, Vikki Entwistle, Anne Langston, Zoe Skea, Health Services Research Unit, University of Aberdeen

Consumers in NHS Research commissioned this piece of work to identify the types of information that are important to potential trial participants and to appraise the ways in which that information could be provided. The assessment was to reflect the perspectives of: people who have recently been approached to take part in a trial, those actively looking to volunteer for a trial, consumer representatives, and the researchers who design and conduct such trials.

An executive summary is also available.

No. of pages: 44



Participants’ Assessment of Clinical Trials (PACT) scoping study: executive summary

Authors: Marion Campbell, Vikki Entwistle, Anne Langston, Zoë Skea, Health Services Research Unit, University of Aberdeen

Consumers in NHS Research commissioned the Health Services Research Unit, University of Aberdeen to assess the types of information that are important to potential trial participants and appraise the ways in which that information could be provided.

The full report is also available.

No. of pages: 4



Autumn 2002

In this issue:

  • Making a Difference 7th of November 2002
  • Support Unit News and recent journal articles
  • Psst! Do you want to involve consumers in your research?
  • Community Action to Housing and Health Research
  • Successful consumer involvement in research: A progress report
  • The TRUE Project
  • The NHS Research & Development Forum
  • Notice Board


Summer 2002

In this issue:

  • New consumer group for palliative care research
  • Support Unit News
  • Good Practice Guide to user involvement in Best Value Reviews
  • Research advisory group for South Asian women with diabetes who do not speak English
  • Journey to Independence: doing research as self-advocates
  • How long term care settings are experienced by people with dementia, their family and carers
  • Notice Board