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Participatory video as a method for enhancing involvement for people with dementia
Abstract: This paper presents the findings of a study funded by the National Institute for Health Researchās School for Social Care Research. It involved 15 people with dementia aged between 76 and 99 years of age who live in residential care. Because it is very easy for people in this situation to be left out …
Do you have an idea for research? How to develop a research priority
Abstract: This interactive workshop aims to equip members of the public with the tools to develop their own research ideas and priorities into potentially researchable questions, enabling them to more confidently discuss them with academic and clinical colleagues. Delegates will be allocated a health or social care topic to consider, with the aim of developing …
VOICE: Science for advocates – Quality advocacy needs quality education
Abstract: Independent Cancer Patientsā Voice (ICPV) is a patient advocate group led by patients for patients. We bring the views and experience of cancer patients, their families and carers to the cancer research community. Our mission statement is that clinical research is improved by patients being partners with clinicians and healthcare professionals, rather than passive …
Using an online survey to paint a picture of service user involvement in the field of Healthcare Associated Infection Research
Abstract: This poster will present the results of an online questionnaire survey of researchers working in the field of Healthcare Associated Infections. The survey asks participants to provide data on: the level and types of patient and public involvement (PPI) included in current and recent research; researchersā experiences of PPI; perspectives on the benefits and …
A model for sustainable and effective PPI in health research
Abstract:The presentation will discuss the role of PPI in the health research world from theĀ point of view of an emergency care, and cancer panel in South Yorkshire and NorthĀ Trent. It will discuss how these panels are able to enhance research for patientĀ benefit and improvements in patient outcomes, by providing trained and supportedĀ lay individuals for research …
The role of INVOLVE for developing the Framework for User Involvement in Research in Denmark
Abstract:Denmark is on the top five list among nations for clinical research. It is documentedĀ that the Danish population has a very positive attitude towards participation in clinicalĀ research. In 2010 it was recognised that this attitude was just one aspect of anĀ active user involvement in research. This presentation will describe how and why the inspiration from …
Performing an inquiry: An innovative model for involving people in the interpretation of research data
Abstract:This workshop will explore how service users are being involved in the interpretationĀ of qualitative research data, as part of a study looking at why people develop severeĀ pressure ulcers (SPU). One of this studyās challenges has been keeping the patientĀ voice strong when data is interpreted by professionals. We are keen to see if serviceĀ users interpret the …
Do you have an idea for research? How to develop a research priority
Abstract:This workshop aims to equip service users with the tools to develop their ownĀ research ideas and priorities into researchable questions. We will use ourĀ experiences of developing a research question and a pilot study from the ideas andĀ interests of a member of the Service User Research Forum. We will present theĀ process we used to develop this …