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The silver screen for PPI: Methods for involving patients and the public in research through film
Abstract: This session would be of interest to anyone wanting to use film as a means of accessing the opinions and experiences of patients and the public and presenting these to a broader audience. Personal experiences are of increasing importance in biomedical research. Accessing this qualitative information has traditionally been done through questionnaires, but filmmaking techniques offer a particularly …
Involving children and young people in research: The usual suspects?
Abstract: How inclusive is public involvement with children and young people? Who gets involved, and who doesn’t? How can we best involve a wide range of children and young people in health and social care research? There is increasing interest in children and young people’s involvement in health, public health and social care research. In …
Using social media for active public involvement in research
Abstract: INVOLVE recently undertook a project looking at the use of social media for public involvement in research. The project advisory group found that while there were resources on using social media for communication and engagement, there was less information avaiable on using social media for active public involvement in research. In addition to conducting …
“If it wasn’t there you’d know it wasn’t there, but how do you prove it?” Patient and public views on assessing the impact of PPI in research
Abstract; Evidence that patient and public involvement (PPI) makes a difference remains largely anecdotal and there are mounting calls for robust, critical evaluation. But how can we assess the impact of PPI, and should we assess it at all? In this paper we explore and discuss the views of 38 patients, carers and members of …
Health Education Reaching Out (HERO) Projects exemplify PPI as a catalyst to improved outcomes not an inhibitor
Abstract: HERO works with students, teachers and health professionals to investigate the best ways of getting health messages across to young people, communities, patients and their families. Active patient and public participation is a significant component of all HERO projects. This presentation will illustrate the different opportunities for stakeholder involvement showing how they can affect …
How to develop meaningful PPI to improve delivery on the Comprehensive Local Research Network (CLRN) network objectives
Abstract: The main theme of the poster will be ‘how to develop meaningful PPI to improve delivery on the Comprehensive Local Research Network (CLRN) network objectives’. This will include information about the ongoing work the CLRN are doing to identify and engage with patient groups within South London. London (South) sees Patient and Public Involvement …
Public involvement in the design and delivery of a diabetes risk reduction lifestyle intervention for people of South Asian origin
Abstract: Theme or key issue: People of South Asian origin are four times more likely to develop type 2 diabetes mellitus (T2DM) than their non-South Asian counterparts. Adopting a healthy lifestyle is known to greatly reduce the risk of developing T2DM however many people find this difficult to do. We set out to design and …
How Alzheimer’s Society used experiences of people with dementia and their carers to support a UK government initiative to prioritise dementia research
Abstract: This presentation and poster will showcase the ways in which people with experience of dementia have supported a UK government initiative to prioritise and improve dementia research. Delegates will learn about innovative techniques to bring together personal experiences of dementia alongside the scientific expertise of dementia researchers. This will provide discussion on the important …