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How can we use existing knowledge and evidence to facilitate patient and public involvement in a quality improvement programme?
Abstract: National Institute for Health Research (NIHR) Colloboration for Leadership in Applied Health Research and Care (CLAHRC) Northwest London facilitates a particular approach to healthcare improvement, with Patient and Public Involvement (PPI) being a core part. We believe involving patients leads to more appropriate and long-lasting improvements. We’ve observed improvement teams benefit from a facilitated …
James Lind Alliance Priority Setting Partnerships: Involving patients to change research
Abstract: This workshop will enable delegates to understand the principles of the James Lind Alliance (JLA) and the ways in which Priority Setting Partnerships (PSPs) are established and conducted in order to influence research agendas. Presenters will explore the motivation of different organisations for running PSPs. The experience of clinicians and patients in the PSP …
Give us the tools…. – A toolkit for PPI designed by, with and for PPI people
Abstract: The cancer Consumer Liaison Group (CLG) is a national network of cancer patients and carers, and is an embedded part of cancer research structures in the UK. The 13-year history of effective cancer patient and public involvement (PPI) by members of the CLG has challenged the terms “professional” and “lay”, and has prompted new …
Inspire, encourage, support: Senior Investigators leading PPI in research
Abstract: National Institute for Health Research (NIHR) Senior Investigators are a network of approximately 200 pre-eminent researchers who represent the country’s outstanding leaders of clinical and applied health and social care research. They are selected through a process of annual competition with advice from an independent expert panel. Patient and public involvement (PPI) has been …
Co-producing not just involving: The lessons learned from an emancipatory action research project into mental health recovery
Abstract: In the past ten years new policy drivers have emerged which extol the virtues of wider public and patient involvement in health research. It’s been suggested that it has the potential to enhance the quality of research whilst also reducing waste of both time and money. This paper draws on the lessons learned from …
Getting the ducks in line: Public involvement in research and organisational development
Abstract: The Quality and Outcomes of person-centred care Research Unit (QORU) is a Policy Research Unit funded by the Department of Health formally launched in January 2011. QORU aims to improve the health and social care of people with long-term conditions through research. This paper describes the journey so far in ensuring that public involvement …
Memories on film: Using creative methods with seldom heard groups
Abstract: This presentation revolves around a screening of a short film produced during the course of research involving working alongside people with dementia to co-produce films about their lives and experiences. There will be discussion in the presentation focused on the use of creative methods with groups that are often less heard, with a particular …
Taking the pulse: An interactive workshop using the example of the National Cancer Patient Experience Survey (NCPES) to encourage fairer access to research for all patients
Abstract: Our consumer-led project introduced questions about research to the annual surveys of 120,000 recently diagnosed cancer patients in England. We will outline some of the findings from that work 33% report having had a discussion about taking part in research 95%of those asked were glad to have been asked 57% of those not asked would …