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Implementing the Statement on Consumer and Community Participation in Health and Medical Research in Australia
This report focuses on disseminating and implementing research, based on an Australian pilot. In 2004, the Consumers’ Health Forum of Australia (CHF) and the National Health and Medical Research Council (NHvIRC) are collaborating to implement their joint Statement on Consumer and Community Participation in Health and Medical Research. CHF’s membership comprises over 100 Australian health …
Public perspectives on assessing what works in health care
We have gathered public perceptions on assessing ‘what works?’ in health by asking people what is most important to assess and how should this be done. We have done this with people working with the Cochrane Collaboration and the NHS Health Technology Assessment Programme. Here we shall present perceptions from the public on testing ‘what …
Undertaking palliative care research: Service users involvement
This paper will discuss a research project being undertaken in palliative care that includes the experience, knowledge and perspectives of service users throughout the research process. This inclusion is achieved via a research User Advisory Group that work with the researcher influencing all stages of the research. The research itself is concerned with the accounts …
A survivor – led evaluation of a survivor-led service
This workshop will present some information about the evaluation of the Leeds Survivor Led Crisis Service carried out by the team, under the following headings: Training: a developmental approach was taken to training to take into account the previous experience and skills of all team members; Mutual support and teamwork: we shall explore the issues …
Making decisions about how to apply what you’ve found out: Involving people with learning difficulties in a European research project
‘I like, I love’ is a research project that covers 6 European countries, looking for a new resource for people with learning difficulties around sexual health that is useful in all partner countries. This report from the researchers involved in the project will consider the professional involvement of people with learning difficulties. The report will …
Knowing how: a guide to getting involved in research
September 2001. A guide for members of the public by Folk.us