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Glaucoma patient day: Engaging patients, improving research and care
Abstract: Glaucoma is the leading cause of irreversible blindness worldwide. Approximately 500,000 people in the UK suffer from glaucoma, of which 67% remains undetected. It is well known that uptake of care and research improves when patients are made partners in their condition. Glaucoma patient days foster a unique learning experience and partnership between patients …
Improving patient and public Involvement: Can evidence based quality improvement tools help?
Abstract: The NIHR CLAHRC for Northwest London facilitates the involvement of patients in evidence based quality improvement initiatives across varied settings. We observed inconsistent uptake of Patient and Public Involvement (PPI) in our teams, and varying levels of value being placed on this activity. To tackle this issue, we created tools to facilitate PPI, using …
Establishing a dedicated Research PPI Group in the NIHR CLAHRC LNR Rehabilitation Theme
Abstract: The NIHR CLAHRC for Leicestershire, Northamptonshire & Rutland Rehabilitation Theme is conducting a novel and ambitious programme of applied research in the field of rehabilitation for patients with chronic cardiopulmonary diseases. The benefits of pulmonary and cardiac rehabilitation are well established and embedded in national and international guidelines. Our research philosophy has been to …
You’ve done the research, now what??
Abstract:There is much advice available to service users and carers who wish to participate in research, but very little on what should happen when studies conclude; although research may be pointless if results are not accurately interpreted and if appropriate people are not made aware of studies and their results. We propose to deliver an interactive, discursive workshop which …
Sharing power: Open Space as a technique to identify what matters to people in the context of a collaborative research programme
Abstract:The National Institute for Health Research (NIHR) Collaboration for Leadership and Applied Health Research and Care (CLAHRC) for Northwest London facilitates the involvement of patients in evidence based quality improvement. We observe that when patients are involved the balance of power generally lies with professionals. We tested Open Space as a specific technique on two occasions to understand if there …
Translating research into a patient friendly and cost effective health care tool: The role of PPI
Abstract:The NIHR CLAHRC for Leicestershire, Northamptonshire & Rutland Rehabilitation Theme is conducting a novel and ambitious programme of applied research in the field of rehabilitation for patients with chronic cardiopulmonary diseases. One extremely important emphasis of CLARHC is around the implementation of research and how applied research is translated into the wider healthcare service. Re-admission of patients with COPD …
James Lind Alliance: Reflecting on nearly 6 years of Priority Setting Partnerships
Abstract:The James Lind Alliance, an initiative funded by NIHR based on the innovative idea of Sir Iain Chalmers, Dr John Scadding and Sir Nick Partridge is shortly to be “mainstreamed” within NETSCC. This session aims to share, in a very practical way, how the process has been developed and used by four different partnerships of Patients and Clinicians, …
Performing an inquiry: An innovative model for involving people in the interpretation of research data
Abstract:This workshop will explore how service users are being involved in the interpretation of qualitative research data, as part of a study looking at why people develop severe pressure ulcers (SPU). One of this study’s challenges has been keeping the patient voice strong when data is interpreted by professionals. We are keen to see if service users interpret the …