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Ambulance ambassador for BME elders
Many ethnic minority elders are unsure when to contact emergency health services and anxious about what will happen if they dial 999. This means that sometimes the ambulance is called too late. Community groups have said that they want to know more about the early signs of life-threatening conditions such as heart attacks, stroke and …
Social care service users’ experiences of individual budgets: An evaluation from one Local Authority pilot
Coventry City Council was one of the thirteen local authorities which piloted Individual Budgets for social care service users. Unlike the national evaluation of Individual Budgets, Coventry City Council commissioned Coventry University to evaluate their pilot by capturing service users’ perspectives and experiences of the extent to which Individual Budgets had empowered them. The evaluation …
Reflections on users and user involvement in community research
In this paper we will consider user involvement in our participatory research to understand the everyday, real life experiences of social networks, neighbourhoods, and communities in relation to individuals’ sense of health and wellbeing. The research we report on has been conducted in a socially, economically and culturally diverse inner-city neighbourhood in a large British …
Involving patients in researching the management of back pain in primary care
An example of patient involvement at various levels in a large research project and support provided to encourage useful patient involvement. Summary Back pain is a common but difficult condition to treat, both for individual patients and healthcare professionals in primary care. The current project was set up to collaboratively learn about how back pain …
DOCTER (Diagnosis of Cancer, the Economic Reality): Issues in user-led research
The poster reports on the progress of the DOCTER project. DOCTER stands for Diagnosis of Cancer: The Economic Reality. This project aims to study the ‘true’ cost of a cancer illness to the patient, their family, society and the NHS. The project has now been funded by the Trent RDSU in support of consumer led …
Faith communities and ambulance services
We are organising a major summit which will bring members of Leicester’s diverse faith communities and Ambulance service managers and paramedics together for the first time. This will be the first time such an event has been held in the UK. It will take place in August 2008. The objectives are to generate community engagement …
Social care service users’ experiences of individual budgets: An evaluation from one Local Authority pilot
Coventry City Council was one of the thirteen local authorities which piloted Individual Budgets for social care service users. Unlike the national evaluation of Individual Budgets, Coventry City Council commissioned Coventry University to evaluate their pilot by capturing service users’ perspectives and experiences of the extent to which Individual Budgets had empowered them. The evaluation …
User controlled research: building together on what we know and exploring next steps
Late in 2005, INVOLVE published the first national review of User Controlled Research (undertaken by the presenters). Produced from a service user perspective, it offered information about the definition, strengths and weaknesses of user controlled research. As well as making clearer what it is and what it can offer, however, it also highlighted concerns about …