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Improving clinical research across the UK: who, why, how?
The UK Clinical Research Collaboration (UKCRC) is a partnership of organisations working to revitalise the environment for clinical research in the UK. Through a coordinated programme of work the UKCRC Partners are working to harness and build on the huge research potential of the NHS. The ultimate aim is to benefit patients and the public …
Involving clients and their carers as equal partners on a project using electronic communication
Sue Ashby works as a member of a research team organising meetings within a project which aims to improve care for older people. The research team are interested in a type of care known as Intermediate Care. This involves looking after a person in their own home or other suitable place providing care which would …
Carer Survey for Cardiac Patients
The Carer Questionnaire Project aims to identify the timeliness, quality and different types of information carers receive regarding their relatives’ cardiac condition. It seeks to discover the perceptions and experience carers have had regarding the following: Being present at the patients’ diagnosis and understanding the impact it had on their future lives. Awareness of the …
Involving visually impaired people in research: a case study
This poster outlines how visually impaired people are being involved in an ongoing research study by a student (Catherine Beverley) at the University of Sheffield. The research concerns the health and social care information needs of people with a visual impairment. At the start of the project, Catherine attended three local visual impairment support groups …
Young People’s Reference Group on Public Health: methods and achievements
This paper will report on the development and progress of a Young People’s Reference Group on Public Health which has been established through the collaboration of three organisations. The group is organised by the National Children’s Bureau on behalf of the Public Health Research Consortium (PHRC), with funding from INVOLVE. The PHRC is funded by …
Getting started with involving the public in public health research
April 2004. An information sheet for researchers.
It’s our project! People with learning difficulties managing and doing research
We are a group of people with learning difficulties called the Learning Difficulties Research Team. The Department of Health asked us to find out all about good ways to involve people with learning difficulties in research. We are doing this by looking at what’s happened in 12 research projects funded by the government through the …
Knowing how: a guide to getting involved in research
September 2001. A guide for members of the public by Folk.us