A model for sustainable and effective PPI in health research
2012 Conference
Abstract:
The presentation will discuss the role of PPI in the health research world from the point of view of an emergency care, and cancer panel in South Yorkshire and North Trent. It will discuss how these panels are able to enhance research for patient benefit and improvements in patient outcomes, by providing trained and supported lay individuals for research projects. The panel provides a constituency for these lay individuals, and gives them a safe haven in which to discuss their ideas and input, and to give a broad response to health researchers. This kind of group working prevents lay researchers from working in isolation. It explains how patients who find committee working difficult can effectively have their voice heard in deliberations about health research. The two presenters have a combination of over twenty years experience, working in the field at local, national, and international levels. It will also explore the support needs of these groups, including the need for finance, time, space and academic and clinical expertise.
Authors
Ardron ~ David
David Ardron, Lay PPI Facilitator, South Yorkshire CLRN. David has worked in patient-public involvement in cancer research for eight years, and more recently in other health areas. His parents are both cancer patients. He is currently working as a PPI facilitator for the South Yorkshire CLRN. He has worked on many local and national research groups and committees.
View all articles by this authorHirst ~ Enid
Enid Hirst, Lay Coordinator, Sheffield Emergency Care Forum. Enid is a member of the Strategic Local Priority Group for PPI in South Yorkshire. She has served on Sheffield Community Health Council, the Children's Hospital Patient Forum and Sheffield LINks. She has been a steering group member for research projects into NHS emergency care services.
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