Breaking roles and making codes: Involving service users and carers in data analysis

2012 Conference

Abstract:
This paper is based on a National Institute for Health Research funded emancipatory action research study exploring if there is a pathway to mental health recovery through care coordination. The research has been developed and delivered by mental health service users and carers with support from academics. Service user and carer involvement in data analysis is often advocated for but not always realised and the process is rarely articulated in any detail.

Service users, carers and academics have worked together on the data analysis for this project and this has enabled the group to contest each other’s views and collaborate on the development of agreed codes and themes.

Using a conversational style, service users, carers and academics will explore their inclusive approach to data analysis and how assumptions have been challenged. In addition they will highlight a number of opportunities for learning together which have led to principles for good practice.