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Building research partnerships: Developing a collaborative approach to support patient and public involvement (PPI) through learning and development

2012 Conference

Abstract:
Building on the partnership between NIHR NCRN and Macmillan, a series of Building Research Partnerships (BRP) workshops were run in 2012 to over 150 people; to mixed audiences of research staff, patients and carers. Workshops are led by trained lay facilitators as part of Macmillan’s quality assured training scheme. A range of learning and support materials for centres running BRP have been developed: www.macmillan.org.uk/researchlearning

The approach taken in leading this pilot has been to support local ownership and management using local PPI¹ networks as a vehicle for capacity building and delivery. Working in this way may prove useful in piloting other learning and development opportunities as part of a wider PPI Learning and Development framework. Building a model of good practice now may be helpful as we look to place PPI Learning and Development within future NIHR research structures.

What will be covered, what will people learn about?
10/15 minute presentation: KI, JN, DS:

  • background context, who we have been working with
  • describing the approach for piloting, including training others to deliver: train the trainer
  • what has been learnt so far and what impact the pilot may have had on practice
  • embedding the learning into future practice

Followed by 10 minutes discussion:

  • How can learning from the pilot be embedded into future practice?

(¹ = PPI networks: In this context-established collaborations between research and service delivery organisations, academia and patient groups.)

Authors

Inns ~ Karen

Karen Inns: Patient and Public Involvement (PPI) Lead, National Institute for Health Research, Cancer Research Network (NIHR NCRN). Karen manages a network of cancer patients and carers facilitating their active involvement in cancer research in support of the work of the NIHR Patient and Public Involvement Programme. She has been working with the Consumer Liaison Group and Macmillan Cancer Support to drive delivery of learning and development activities supporting collaborations between researchers, patients and carers. Further information at: www.ncrn.org.uk

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Nunn ~ Jack

Jack Nunn: Learning and Development Coordinator, Macmillan Cancer Support. Jack leads for Macmillan on designing and developing learning resources and events supporting PPI in improving services and research. Jack works with a network of Cancer Voices (people affected by cancer) and Macmillan trainers to create relevant and useful learning opportunities. His passion is holistic thinking and seeking ways to work with others with similar aims to support strong and effective public involvement.

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Stewart ~ Derek

Derek Stewart: PPI Facilitator and Macmillan Trainer. Derek has been involved in working with Jack, Karen and other Macmillan trainers to help shape the content and delivery of Building Research Partnerships workshops. He also brings experience of facilitating several of the workshops during 2012.

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