2012 Conference

Abstract: HERO works with students, teachers and health professionals to investigate the best ways of getting health messages across to young people, communities, patients and their families. Active patient and public participation is a significant component of all HERO projects. This presentation will illustrate the different opportunities for stakeholder involvement showing how they can affect research design through to identifying new research areas, resulting in novel projects addressing the issues that are key. HERO works in partnership with clinical genetics providing a family and community facing service that enables us to bring research initiatives and developments to wider audiences and providing a route for the public to identify their own priorities for health research.

We will present an overview of the PPI in the projects and give the stakeholder perspective of being involved, how was it for them and what next? The aim will be to show that PPI is a resource and that the more perspectives we have the more barriers or issues will be raised early in the process resulting in relevant interventions and initiatives. Discussions will revolve around the participant’s perspective, the benefits of effective PPI and avoiding tokenism.

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Authors

Barwell ~ Julian

Clinical Senior Lecturer in Familial Cancer Susceptibility and Honorary Consultant, Department of Genetics, University of Leicester and University Hospitals Leicester. Dr Julian Barwell, works in Clinical Cancer Genetics where they aim to improve in Leicester, Leicestershire and Rutland (LLR) local research into inherited cancer susceptibility and personalised cancer treatments, cancer identification through targeted screening and cancer risk assessment based on family history and environmental factors.

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Cashmore ~ Annette

Director of GENIE CETL (Centre for Excellence in Teaching and Learning), Department of Genetics, University of Leicester. Professor Cashmore now focuses her research on the genetics of pathogenic fungi. Since 2003, she has been Sub Dean of Medicine and Biological Sciences at the University of Leicester. In 2005 she established a Centre for Excellence for Teaching and Learning in Genetics and she is currently Director of this initiative.

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Singletary ~ Joanne

Research Assistant, GENIE CETL (Centre for Excellence in Teaching and Learning), Department of Genetics, University of Leicester

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Suter-Giorgini ~ Nicola

Teaching Fellow, GENIE CETL (Centre for Excellence in Teaching and Learning), Department of Genetics, University of Leicester

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Wray ~ Paula

Paula Wray is the Public Involvement Programme Lead for the Collaboration for Leadership in Applied Health Research and Care (CLAHRC) East Midlands and has a strategic role ensuring that public involvement and stakeholder engagement is central to the CLAHRC and its projects. She is setting up a Patient and Public Partners’ Council and the East Midlands (EM) Centre for Ethnic Health to facilitate diverse engagement and more ground up direction for the organisation.

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