“No – You don’t know how we feel” – Getting the message across: young people, facing the life-threatening illness of a parent, make their voices heard
2004 Conference
The Video Project was a collaborative inquiry with 9 young people, facing the serious illness of a parent, to discover their views and needs, through the making of a video. The film was aimed not at professionals but at families in a similar situation and its aim was to improve the way children are supported in the face of the possible death of a parent.
The paper will specifically address the way in which our collaborative inquiry has attempted to disseminate its findings: the obstacles we have encountered in involving children ( ie non-academics, non-adults) in dissemination; the advantages and disadvantages of video as a medium for dissemination; And the challenges facing implementation of the findings.
Issues that will be raised for discussion will include:‑
Ethical issues in involving children in presentations, conferences
Challenging the adult and academically oriented nature of research dissemination
Limitations and advantages of collaborative inquiry
The rights of children, with reference to UN Declaration of Rights of the Child, and The Children Act 1989
Can the camera lie? – the use of video in research
Authors
people ~ Young
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